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Thanks! I do want to collect data, but it’s too long a process to really get anything but anecdotal evidence. I wished they researched it as a rehab method, but the owner is more interested in thinking up a theory of why it works and trying to get neuroscientists involved. Not the road to...

I agree that that is a component, of course. On the other hand, I did the exercises for a year badly and surely gained some result in stabilizing, but the difference with doing it well was massive as I could actually progress well beyond stabilizing. The difference between a bad and a good...

The same for me, it has nothing to do with nervousness. For me, it felt mostly like muscle tightness that I was hardly aware of anymore. Say for example you lift a dumbbell of 1kg with your biceps, apparently my bodies reaction is to do that with the muscle force and recruitment of every and all...

I have been keeping track anecdotally, but it’s too varied to really collect data. To be honest, although it helped me, I don’t see this as a future option for pwME. It’s just a small business of two people being very good at what they do, but there is not nearly enough capacity to treat so...

You have to be able to do one tiny piece of movement, without getting your heart rate up, shaking or tensing all your muscles, getting warm or flushed etc, all the normal things that happen in a sympathetic overload, only now you don’t stop when the symptoms get bigger, you try to find the...

I always was way better in the cold, but it could be a factor. I am in contact with about 50 people that went there. Some people do great, some people have a lot of dips. What I hear most is people going way to fast, most people really need to build every step extremely solid before going...

I have done 4 weeks in Australia, three years ago. As I understand it, he had the method first, and tried to find an explanation for it. To be honest, I think there is way to much focus on the theory, it would be better to just go spread the method. I would say it’s an advanced type of...

I have been very well! Sorry, never saw your message. It’s been a long time since I have been on this forum.

It sounds like the same concepts. The tremors are for getting your range of motion back and the exercises in the proper posture are for getting the right muscles to fire. Simply said. My whole body was so messed up, there was pretty much no part of my body moving normally. I can now feel my...

No, it's the person that is shaking. You take the little tremor you get when something is heavy and you allow that to get bigger. Mostly by relaxing parts of your body. it takes so much tension out of all parts and muscles of your body, it's really nice. Looks a bit weird though:laugh: You do it...

:laugh::laugh: You can pretty easily build it up from there. I do it everyday in the gym now, I wanted to make a t-shirt that says: “don’t worry, I don’t have epilepsy” but everyone is so absorbed in their own thing, no-one cares:laugh::laugh:

:):):):) Hihi, I haven’t looked at it like that:laugh::laugh: It’s more like very good physiotherapy:thumbup::laugh: In practice there was not much mind/body talk at all. Do you have shaking muscles with every movement? That’s it:)

Found it:

I don’t know if I talked about that. Because they only use that in the intensive sessions in Australia. It’s some sort of temporary reset to the nervous system. To me, it feels like I can have my own chirorpactor/masseuse with me at all times:laugh: You can just loosen all your muscles up in a...

Hi guys, I don’t know if anyone is interested in a little update, but here it is:) I am back from Australia since about a month. I actually had a holiday there, hardly any symptoms and walked 10.000-15.000 steps A DAY:nailbiting::thumbup::thumbup: The tremors they teach you are a game...

I had to give some kind of update:) I’m in Australia at the moment, this is so cool. They are definitely the real deal, pretty much building my body up from the ground up. It’s super interesting and I’m gaining muscle power very slowly still, but the inprovement is there:thumbup::thumbup...

Yes, it going really well! With all the practice I’m putting in, it’s getting easier and easier to turn of all that excessive muscle activity, that I really don’t need:banghead: it’s really insane how my body wants to involuntary use muscles when lying on the couch after exertion for hours and...

The placebo effect is mostly "regression to the mean". So in fluctuating disease the placebo-effect can be very big. Plus the effect we are seeing in the PACE study, where people want to please the therapist or doctor or report their subjective complaints differently. I do think the positivity...

I think SIBO might be part of a lot of diseases, it's essentially just something that happens when the mobility in your gut is not good. I love the work of Mark Pimentel on SIBO, although he treats often with more than one antibiotic and my specialist says that that's too much for most ME...

Just a little update! I’m doing amazingly well, I can hardly believe it:nailbiting::nailbiting: I am beginning to think this might be remission. I have the feeling I actually have my life back since 2 months now:angel::angel::angel: I think I finally hit the right combination of medication and...