Still shielding at home, alone, since March 2020. Only totally essential contact and masked where possible. Unfortunately I got covid straight...
Sean I think you would have felt worse by now if there was a problem? I don't think I have any more info (I never got put on the meds but I'm...
I thought statins were known to make ME/CFS worse? In fact a doctor was going to prescribe me cholesterol lowering medication. She was very good....
Thank you for writing this post. I really relate to this and exactly describes my experience as well. I feel less alone reading this and some...
There is not enough understanding of the point that there is often a conflation between "autism" and co-occuring conditions. People want to treat...
Is anyone planning on doing updates on the inquest or is the only way to follow it by emailing the address to ask for a link? Has anyone done...
Thanks for the laugh, @Andy! I do hope we get a sterilizing vaccine in my lifetime, in all seriousness. I can't afford to get it again so I am...
ITV piece on Millie situation aired tonight. Local news I think....
Re: Steve Topple piece If we protest or complain this often has a negative effect on people's perceptions of "the community" i.e. ME patients as...
For me the main problem is that PEM is not under the main symptoms on page 1. I have no idea how this happened. None of the statements are a...
I have been unable to follow some of this; is anything happening/is there any movement? Is it just more delay or is it saying the review will stay...
I had to redo my sample as it had not been extracted properly apparently. But i sent it off a while ago and it was received. Should I be worried...
Is there any hope of eg the charities flagging this issue in their materials to put pressure on NHS England to change the website before whenever...
Who at NHS England will be responsible for the content of this? They have not been good on various matters re: the pandemic, and SW is on the...
I feel like in the UK they never acknowledged this as part of LC officially? (Unlike in the US, where they did.)
[MEDIA] EDIT: Janet Dafoe: "The director of Dr Tedros’ office just called me. Ron and I spoke with her at length. She is lovely! We were able to...
I am a bit lost. Is that what is happening? If so, what?? Can someone explain; I am really sorry. :(
As far as I was aware there isn't anything that "CBT" actually is, and that pretty much anything can be called "CBT"?
[MEDIA]
Thank-you for posting this. I have no words at present!
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