I've edited my post to add the possibility of a trial like the one @Jonathan Edwards described in #83, that looks at different doses of the same...
Thanks so much for explaining that, @EndME , and for doing it so clearly. I did not know that, and now I do. Rekeland et al. give a nice list...
Thanks for clarifying. In that case, I don't understand why you say How can you back down on something you might have advocated if a trial that...
Rekeland et al. did not condone widespread use of cyclophosphamide in the 2020 paper. Here's the unedited context of the part you quoted,...
Thanks, @Hutan . You outlined the reasons why I think the data are still relevant really well – you saved me a post! I think what’s difficult,...
Yes, the SF36PF only measures physical function, which is relevant in this thread where return to exercise and step count are being mentioned...
Really glad you’re doing well @siobhanfirestone , long may it last. Enjoy. For the overall scientific discussion, I think the PACE trial’s...
Wonderful news! I’m delighted for you that you got a joint assessment with the ENT and a speech & language Therapist – I used to do those joint...
I don't think you're overthinking anything, I think you're trying to get access to the service you should have had many years ago. Do you know...
Since you've already seen a number of ENTs and all have said your laryngeal exam was normal, I would think about making this ENT appointment your...
I’m a Speech & Language Therapist, retired due to ME/CFS. I have experience with voice disorders. We used to do joint clinics with ENT, where...
Very helpful post. I had seen it, and then apparently erased it from my brain.
From part 2 of Jeanette's blog: Does the part in brackets mean that her analysis of virtual rewards won excludes the five patients she argues...
Yes, you're right.
You sign a user agreement that says you cannot share the data except with others registered with mapMECFS. So you can analyse the data and share...
In part 2 of Jeanette’s blog, this bit (that @forestglip and @bobbler mentioned above) stuck out: I don't think this is right. Participants won...
I find it interesting that you see this 1/3 figure being used by some (sorry, can't come up with other names, am shattered, but there was an...
I mentioned these van Campen severity ranges in an email to Dr Walitt - I wonder if this influenced this part of the Q&A the NIH subsequently...
I have only skimmed the draft, so just a couple of notes on this particular bit: For anyone who wants to quote any calculations based on data...
Thanks Trish. I remember doing it through thick brain fog. I had to check and double-check and triple-check and quadruple-check all the...
Separate names with a comma.
