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Oh great! My father who reads this newspaper is going to cut this article out and shove it in my face and force me to get CBT. I'm thinking of leaving a comment on the article webpage. Any pointers on what to mention, especially about the flaws of that 2020 study? I have brain fog right now...

I can describe my OI to be a strong urge to lie down after being upright for a while. There isn't really much change in HR or HRV (as seen in Garmin watch) when I get the urge to lie down. If I try to fight the urge, I get restless, I can't exert cognitively, I get back ache, I bend down...

Preprint now available: Preprint - Safety, tolerability and clinical effects of BC007 on fatigue and quality of life in patients with post-COVID syndrome (reCOVer)..,2024,Bettina et al | Science for ME

Safety, tolerability and clinical effects of BC007 on fatigue and quality of life in patients with post-COVID syndrome (reCOVer): a prospective, exploratory, randomised , placebo-controlled, double-blind, crossover phase IIa clinical trial Bettina Hohberger, Marion Ganslmayer, Thomas Harrer...

Link: Assessment of the therapeutic potential of salubrinal for ME/CFS and long-COVID - ScienceDirect Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic debilitating condition with no cure that shares commonality with long-COVID. This review examines current...

https://papers.ssrn.com/sol3/papers.cfm?abstract_id=4950019 Authors: Ana R. Silverstein, Junxiang Wan, Kelvin Yen, Hemal H. Mehta, Hiroshi Kumagai, Melanie Flores, Jesse Goodrich, Howard Hu, Jeffrey D. Klausner, Omid Akbari, Igor Koralnik, Pinchas Cohen Abstract Long COVID, affecting an...

I have tried Taurine 2-3 times, and while it has some effect on fatigue, each time it increased the loudness of my tinnitus. So stopped, but everyone is different so it may help some. I think Taurine has an effect on GABA receptors, and hence it is calming.

There's also an anime series called "Cells at Work", which features anthropomorphized cells in the human body. The two protagonists, an RBC and a WBC keep bumping into each other throughout the whole series, which is hilarious. It is aimed at students and the younger generation, but still good...

Now published - see post #20 Ruoyun Xiong, Elizabeth Aiken, Ryan Caldwell, Suzanne D. Vernon, Lina Kozhaya, Courtney Gunter, Lucinda Bateman, Derya Unutmaz & Julia Oh ******************************** https://www.biorxiv.org/content/10.1101/2024.06.24.600378v1 BioMapAI: Artificial Intelligence...

I definitely had POTS or OI for years before I got ME with PEM. I used to work for 12 hours without any issue, and then after a viral infection in college, I could only be upright for a few hours without having a strong urge to sit or lie down and keep my feet up. And when I had to get an ECG...

https://www.nature.com/articles/s41467-024-48651-0 Abstract After contracting COVID-19, a substantial number of individuals develop a Post-COVID-Condition, marked by neurologic symptoms such as cognitive deficits, olfactory dysfunction, and fatigue. Despite this, biomarkers and...

https://www.journalofinfection.com/article/S0163-4453(24)00117-8/fulltext Highlights Our study included 892,312 patients with COVID-19 across 173 studies spanning over 50 countries. It revealed a substantial prevalence of MDRO infection (42.1%) in COVID-19 patients, and a notable overall...

Also in the Polybio Conference, Dr. Victoria Cortes Bastos on an overview of ME/CFS blood and cerebrospinal fluid samples

Key points from Steven Deeks at the PolyBio conference happening now: 1. LIINC Long Covid Clinical trials started/planned for 4 treatments 2. Same approach previous applied in understanding HIV and currently applied in Long Covid will be applied to funded ME research Timothy Henrich at...

Highlights • Improvement from post-COVID-19 cognitive impairment (CI) is slow • Post-COVID-19 CI is molecularly distinct from Alzheimer’s disease • Post-COVID-19 CI is associated with CSF monocyte recruitment and gene alterations • Improvement from post-COVID-19 CI is linked to greater CSF...

Post-Viral Trials News on X: "Thanks to @WesElyMD for appearing! Two highlights on baricitinib RCT: 1. Part of trial motivation: LC patients incidentally on baricitinib for different indication whose LC improved (case series out later this year) 2. Will have a 50ish-patient “presumed”...

They are also doing a trial of Lumbrokinase on ME/CFS, Long Covid and Long Lyme Lumbrokinase LongCOVID & ME/CFS clinical trial - PolyBio Research Foundation

If there are no cognitive issues in ME/CFS, what's to stop us patients from hopping on a wheelchair and getting back to work or school? I'm a PhD dropout and my brain feels inflamed and legs aching just by trying to read this paper.

First news: https://www.statnews.com/2024/02/21/nih-study-myalgic-encephalomyelitis-chronic-fatigue-syndrome-news/ Moderator note: Posts on some specific parts of the study are in separate threads, for improved readability: Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024...