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  1. Dx Revision Watch

    United Kingdom: ME Association governance issues

    https://meassociation.org.uk/2026/01/the-me-association-post-agm-statement/ The ME Association – Post AGM Statement January 12, 2026 Stage 3 Announcement Winter 2025
  2. Dx Revision Watch

    United Kingdom: ME Association news

    https://meassociation.org.uk/2026/01/the-me-association-post-agm-statement/ The ME Association – Post AGM Statement January 12, 2026 Stage 3 Announcement Winter 2025 Following the December 2024 AGM, the Board commissioned an independent governance review to assess how effectively the charity’s...
  3. Dx Revision Watch

    Updates on status of ICD-11 and changes to other classification and terminology systems

    Update on SNOMED CT terminology system Concept Code: 52702003 Chronic fatigue syndrome (disorder): The hierarchical relationship of “postviral fatigue syndrome”, “chronic fatigue syndrome” and “myalgic encephalomyelitis” within SNOMED CT differs from ICD-10 and ICD-11. In SNOMED CT, “postviral...
  4. Dx Revision Watch

    US ICD-10-CM Codes List R00–R99 R50-R69 Malaise and fatigue (R53)

    WHO's International edition of ICD-10: Versions 2016 and 2019: https://icd.who.int/browse10/2019/en#/R53 R53 Malaise and fatigue Incl.: Asthenia NOS Debility: NOS chronic General physical deterioration Lethargy Tiredness Excl.: debility: congenital (P96.9) senile (R54) exhaustion and...
  5. Dx Revision Watch

    Updates on status of ICD-11 and changes to other classification and terminology systems

    Note that whatever term the clinician/coder uses from ICD-11, all terms code to ICD-11's 8E49.
  6. Dx Revision Watch

    Updates on status of ICD-11 and changes to other classification and terminology systems

    I know many will welcome this addition but personally, I have never liked the term "chronic fatigue syndrome" and my preference would be not to have it coupled with "myalgic encephalomyelitis" in classification, terminology systems and clinical settings. The international edition of SNOMED-CT...
  7. Dx Revision Watch

    Updates on status of ICD-11 and changes to other classification and terminology systems

    No. The conjoined term "myalgic encephalomyelitis/chronic fatigue syndrome" and the acronym "ME/CFS" have not previously been included in ICD. The existing terms: "chronic fatigue syndrome" and "myalgic encephalomyelitis" are Inclusions under the "Title" code 8E49 Postviral fatigue syndrome...
  8. Dx Revision Watch

    Updates on status of ICD-11 and changes to other classification and terminology systems

    Update on Proposals for the ICD-11 code: 8E49 Postviral fatigue syndrome: On August 26, 2025 a proposal to add additional terms under Synonyms was submitted via the ICD-11 Proposals platform by Dr Islam Ibrahim, WHO-FIC CC (World Health Organization Family of International Classifications...
  9. Dx Revision Watch

    UK Overlapping Illness Alliance

    Jen Brea was trying to whip up interest a few years ago for a multi diagnosis/symptoms coalition group for "giraffes", "zebras" and a Noah's ark of conditions.
  10. Dx Revision Watch

    UK Overlapping Illness Alliance

    I'm not surprised.
  11. Dx Revision Watch

    UK Overlapping Illness Alliance

    I'm not a fan of "overlapping symptom" collaborations and I remain concerned that "PEM" is going to end up meaning anything anyone wants it to mean - especially if CDC/NCHS do eventually approve the request for adding a symptom code for PEM to the US's ICD-10-CM Symptoms and signs chapter. The...
  12. Dx Revision Watch

    Updates on status of ICD-11 and changes to other classification and terminology systems

    Arthur @unreal_arthur @dxrevisionwatch maybe this SNOMED data could be used? https://digital.nhs.uk/data-and-information/publications/statistical/mi-snomed-code-usage-in-primary-care/2023-24… My understanding is that it doesn’t show how many people are diagnosed, just the frequency GPs are using...
  13. Dx Revision Watch

    Updates on status of ICD-11 and changes to other classification and terminology systems

    My adult son had received a diagnosis from an NHS paediatric consultant in mid 1999. Initially, he was given a tentative diagnosis of "Postviral fatigue". This was subsequently revised in clinic follow-up letters to ME/PVFS, ME/CFS, CFS, CFS/ME depending on which member of the clinic staff he...
  14. Dx Revision Watch

    Updates on status of ICD-11 and changes to other classification and terminology systems

    You can ask your practice to use any of the terms: Iceland disease Benign myalgic encephalomyelitis Chronic fatigue syndrome Myalgic encephalomyelitis syndrome ME - Myalgic encephalomyelitis Myalgic encephalomyelitis CFS - Chronic fatigue syndrome Chronic fatigue...
  15. Dx Revision Watch

    Updates on status of ICD-11 and changes to other classification and terminology systems

    My GP practice uses SystmOne for patient EMRs which is a clinical computer system produced by TPP. I have access to SystmOnline (the portal for patients) and can view my medical notes online or via the Airmid app and the CTv3 codes are all visible. But some people I know whose GP practices use...
  16. Dx Revision Watch

    Updates on status of ICD-11 and changes to other classification and terminology systems

    NHS England uses both but for different purposes. SNOMED CT has been mandated for use in patients' electronic medical records at the point of contact in primary care since 2018, though some practices have been slower to implement than others. This presentation may be of interest...
  17. Dx Revision Watch

    Updates on status of ICD-11 and changes to other classification and terminology systems

    Update on request for changes to SNOMED CT UK Edition and International Edition: Key points: 1 For SNOMED CT UK Edition, the conjoined terms: "ME/CFS - myalgic encephalomyelitis/chronic fatigue syndrome" and "Myalgic encephalomyelitis/chronic fatigue syndrome" have been added under Synonyms...
  18. Dx Revision Watch

    United Kingdom: Dr Suzanne O’Sullivan (BPS neurologist)

    Saturday's Times "Weekend" supplement print edition 15 March 2025 (pp 32-33): Weekend Essay "Spotting disease early can save lives but medical advances have led to an epidemic of overdiagnosis - and this is doing more harm than good," writes Suzanne O'Sullivan Autism, ADHD, early diagnosis of...
  19. Dx Revision Watch

    United Kingdom: ME Association governance issues

    If 'there had been no changes to the substance of those "regulated clauses"' why had they put out a Resolution for specific changes to articles 24 and 28 in 2013? A great deal of the wording of the entire Articles had been redrafted from version 2007 to version 2013 because of the adoption of...
  20. Dx Revision Watch

    United Kingdom: ME Association governance issues

    Indeed. One cannot help but conclude that Mr Riley preferred obfuscation over setting out clearly what had happened and took a perverse delight in our frustration trying to make sense of it all.
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