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  1. Dx Revision Watch
    Post

    Preprint A Critical Analysis of UK Media Characterisations of Long Covid in Children and Young People, 2024, Connor et al

    Still can't find yesterday's Time print edition article "Parents accused of faking their children's long Covid" on the Times website.
    Post by: Dx Revision Watch, Apr 18, 2024 at 9:12 AM in forum: Long Covid research
  2. Dx Revision Watch
    Post

    Preprint A Critical Analysis of UK Media Characterisations of Long Covid in Children and Young People, 2024, Connor et al

    You're welcome, Binkie4.
    Post by: Dx Revision Watch, Apr 17, 2024 at 7:34 PM in forum: Long Covid research
  3. Dx Revision Watch
    Post

    Preprint A Critical Analysis of UK Media Characterisations of Long Covid in Children and Young People, 2024, Connor et al

    Perhaps it will be online tomorrow.
    Post by: Dx Revision Watch, Apr 17, 2024 at 7:34 PM in forum: Long Covid research
  4. Dx Revision Watch
    Post

    Preprint A Critical Analysis of UK Media Characterisations of Long Covid in Children and Young People, 2024, Connor et al

    I can't find it online either, but here is an image from page 4 of the print edition: [IMG]
    Post by: Dx Revision Watch, Apr 17, 2024 at 7:22 PM in forum: Long Covid research
  5. Dx Revision Watch
    Post

    USA: “Movie About M.E." and "Banner for Awareness" (formerly "One Name Campaign")

    The website: https://www.doyouhaveme.com/ has also been taken offline.
    Post by: Dx Revision Watch, Apr 13, 2024 at 9:30 PM in forum: General ME/CFS news
  6. Dx Revision Watch
    Post

    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    Update: 11 April: Etta Loveday @EttaLovedayME Millie update Petition...
    Post by: Dx Revision Watch, Apr 11, 2024 in forum: General ME/CFS news
  7. Dx Revision Watch
    Post

    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    My understanding is that Dr Bansal sees patients privately since retiring from the NHS.
    Post by: Dx Revision Watch, Apr 10, 2024 in forum: General ME/CFS news
  8. Dx Revision Watch
    Post

    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    [MEDIA] Etta Loveday @EttaLovedayME Update about Millie Petition...
    Post by: Dx Revision Watch, Apr 10, 2024 in forum: General ME/CFS news
  9. Dx Revision Watch
    Post

    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    [MEDIA] ME Association @MEAssociation Dr William Weir and Dr Charles Shepherd are both involved in helping Millie and her family. The ME...
    Post by: Dx Revision Watch, Apr 9, 2024 in forum: General ME/CFS news
  10. Dx Revision Watch
    Post

    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    [MEDIA] Julie Houston @JulesAHouston This is a big day for Millie & her family. In addition to the Twitterstorm at 11am, there will be a...
    Post by: Dx Revision Watch, Apr 9, 2024 in forum: General ME/CFS news
  11. Dx Revision Watch
    Post

    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    [MEDIA] Etta Loveday @EttaLovedayME Latest update from yesterday (4/04/24) Petition...
    Post by: Dx Revision Watch, Apr 5, 2024 in forum: General ME/CFS news
  12. Dx Revision Watch
    Post

    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    Mirror Exclusive: https://www.mirror.co.uk/news/health/severe-killing-me-doctors-wont-32491644 'I can't walk, talk or eat - doctors don't...
    Post by: Dx Revision Watch, Apr 4, 2024 in forum: General ME/CFS news
  13. Dx Revision Watch
    Post

    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    Update on Millie: [MEDIA] Update: The last week and a half have been extremely stressful and awful for Millie and the family. Thank you...
    Post by: Dx Revision Watch, Apr 4, 2024 in forum: General ME/CFS news
  14. Dx Revision Watch
    Post

    Updates on status of ICD-11 and changes to other classification and terminology systems

    Update from Patient-Led Research Collaboration on status of proposal to add a code for PEM/PESE to the Symptoms chapter of ICD-10-CM: [MEDIA]...
    Post by: Dx Revision Watch, Mar 8, 2024 in forum: Disease coding
  15. Dx Revision Watch
    Post

    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    https://www.thecanary.co/uk/news/2024/03/08/millie-severe-me-update/ Severe ME patient Millie’s sister tells the Canary the situation is...
    Post by: Dx Revision Watch, Mar 8, 2024 in forum: General ME/CFS news
  16. Dx Revision Watch
    Post

    NICE guideline on ME/CFS: robust advice based on a thorough review of the evidence, 2024, Barry et al.

    Should think so, too. Anything concerning a NICE guideline should be public domain where patients can access it freely.
    Post by: Dx Revision Watch, Mar 7, 2024 in forum: ME/CFS research
  17. Dx Revision Watch
    Post

    Graded exercise therapy compared to activity management for paediatric [CFS/ME]: pragmatic randomized controlled trial, 2024, Gaunt, Crawley et al.

    Mmm, that's very cosy.
    Post by: Dx Revision Watch, Mar 6, 2024 in forum: ME/CFS research
  18. Dx Revision Watch
    Post

    Graded exercise therapy compared to activity management for paediatric [CFS/ME]: pragmatic randomized controlled trial, 2024, Gaunt, Crawley et al.

    Thanks for looking into this, Hutan.
    Post by: Dx Revision Watch, Mar 6, 2024 in forum: ME/CFS research
  19. Dx Revision Watch
    Post

    Graded exercise therapy compared to activity management for paediatric [CFS/ME]: pragmatic randomized controlled trial, 2024, Gaunt, Crawley et al.

    Indeed. One thing's for sure, it will be interesting to see what Crawley does next (and how much funding she's awarded for doing it). I see she's...
    Post by: Dx Revision Watch, Mar 5, 2024 in forum: ME/CFS research
  20. Dx Revision Watch
    Post

    Graded exercise therapy compared to activity management for paediatric [CFS/ME]: pragmatic randomized controlled trial, 2024, Gaunt, Crawley et al.

    FITNET got ethics approval in October 2016: "Ethics approval(s) Frenchay Research Ethics Committee, 10/10/2016, ref: 16/SW/0268" "When is the...
    Post by: Dx Revision Watch, Mar 4, 2024 in forum: ME/CFS research
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