https://meassociation.org.uk/2026/01/the-me-association-post-agm-statement/
The ME Association – Post AGM Statement
January 12, 2026
Stage 3 Announcement Winter 2025
https://meassociation.org.uk/2026/01/the-me-association-post-agm-statement/
The ME Association – Post AGM Statement
January 12, 2026
Stage 3 Announcement Winter 2025
Following the December 2024 AGM, the Board commissioned an independent governance review to assess how effectively the charity’s...
Update on SNOMED CT terminology system Concept Code: 52702003 Chronic fatigue syndrome (disorder):
The hierarchical relationship of “postviral fatigue syndrome”, “chronic fatigue syndrome” and “myalgic encephalomyelitis” within SNOMED CT differs from ICD-10 and ICD-11.
In SNOMED CT, “postviral...
WHO's International edition of ICD-10: Versions 2016 and 2019:
https://icd.who.int/browse10/2019/en#/R53
R53 Malaise and fatigue
Incl.: Asthenia NOS
Debility:
NOS
chronic
General physical deterioration
Lethargy
Tiredness
Excl.: debility:
congenital (P96.9)
senile (R54)
exhaustion and...
I know many will welcome this addition but personally, I have never liked the term "chronic fatigue syndrome" and my preference would be not to have it coupled with "myalgic encephalomyelitis" in classification, terminology systems and clinical settings.
The international edition of SNOMED-CT...
No.
The conjoined term "myalgic encephalomyelitis/chronic fatigue syndrome" and the acronym "ME/CFS" have not previously been included in ICD.
The existing terms:
"chronic fatigue syndrome" and "myalgic encephalomyelitis" are Inclusions under the "Title" code 8E49 Postviral fatigue syndrome...
Update on Proposals for the ICD-11 code: 8E49 Postviral fatigue syndrome:
On August 26, 2025 a proposal to add additional terms under Synonyms was submitted via the ICD-11 Proposals platform by Dr Islam Ibrahim, WHO-FIC CC (World Health Organization Family of International Classifications...
Jen Brea was trying to whip up interest a few years ago for a multi diagnosis/symptoms coalition group for "giraffes", "zebras" and a Noah's ark of conditions.
I'm not a fan of "overlapping symptom" collaborations and I remain concerned that "PEM" is going to end up meaning anything anyone wants it to mean - especially if CDC/NCHS do eventually approve the request for adding a symptom code for PEM to the US's ICD-10-CM Symptoms and signs chapter.
The...
Arthur
@unreal_arthur
@dxrevisionwatch
maybe this SNOMED data could be used? https://digital.nhs.uk/data-and-information/publications/statistical/mi-snomed-code-usage-in-primary-care/2023-24… My understanding is that it doesn’t show how many people are diagnosed, just the frequency GPs are using...
My adult son had received a diagnosis from an NHS paediatric consultant in mid 1999. Initially, he was given a tentative diagnosis of "Postviral fatigue". This was subsequently revised in clinic follow-up letters to ME/PVFS, ME/CFS, CFS, CFS/ME depending on which member of the clinic staff he...
You can ask your practice to use any of the terms:
Iceland disease
Benign myalgic encephalomyelitis
Chronic fatigue syndrome
Myalgic encephalomyelitis syndrome
ME - Myalgic encephalomyelitis
Myalgic encephalomyelitis
CFS - Chronic fatigue syndrome
Chronic fatigue...
My GP practice uses SystmOne for patient EMRs which is a clinical computer system produced by TPP. I have access to SystmOnline (the portal for patients) and can view my medical notes online or via the Airmid app and the CTv3 codes are all visible.
But some people I know whose GP practices use...
NHS England uses both but for different purposes.
SNOMED CT has been mandated for use in patients' electronic medical records at the point of contact in primary care since 2018, though some practices have been slower to implement than others.
This presentation may be of interest...
Update on request for changes to SNOMED CT UK Edition and International Edition:
Key points:
1 For SNOMED CT UK Edition, the conjoined terms: "ME/CFS - myalgic encephalomyelitis/chronic fatigue syndrome" and "Myalgic encephalomyelitis/chronic fatigue syndrome" have been added under Synonyms...
Saturday's Times "Weekend" supplement print edition 15 March 2025 (pp 32-33):
Weekend Essay
"Spotting disease early can save lives but medical advances have led to an epidemic of overdiagnosis - and this is doing more harm than good," writes Suzanne O'Sullivan
Autism, ADHD, early diagnosis of...
If 'there had been no changes to the substance of those "regulated clauses"' why had they put out a Resolution for specific changes to articles 24 and 28 in 2013?
A great deal of the wording of the entire Articles had been redrafted from version 2007 to version 2013 because of the adoption of...
Indeed. One cannot help but conclude that Mr Riley preferred obfuscation over setting out clearly what had happened and took a perverse delight in our frustration trying to make sense of it all.
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