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  1. Haveyoutriedyoga
    Post

    Wellness Recovery Action Plan, as recommended by BACME, UK

    I'm going to borrow that phrase!
    Post by: Haveyoutriedyoga, Apr 18, 2024 at 8:42 AM in forum: Psychosomatic theories and treatments discussions
  2. Haveyoutriedyoga
    Post

    Wellness Recovery Action Plan, as recommended by BACME, UK

    Well it MAY be useful...but certainly not for everyone!
    Post by: Haveyoutriedyoga, Apr 17, 2024 in forum: Psychosomatic theories and treatments discussions
  3. Haveyoutriedyoga
    Post

    Wellness Recovery Action Plan, as recommended by BACME, UK

    My MH care coordinator navigator person did one of these on the phone with me over a long session that really exhausted me and I never got back....
    Post by: Haveyoutriedyoga, Apr 17, 2024 in forum: Psychosomatic theories and treatments discussions
  4. Haveyoutriedyoga
    Post

    BBC podcast: Inside Health - Can Noise Harm Our Health? 2024

    Thanks, I tried to copy the blurb but it would let me!
    Post by: Haveyoutriedyoga, Apr 3, 2024 in forum: Other health news and research
  5. Haveyoutriedyoga
    Thread

    BBC podcast: Inside Health - Can Noise Harm Our Health? 2024

    https://www.bbc.co.uk/sounds/play/m001xvnb?partner=uk.co.bbc&origin=share-mobile
    Thread by: Haveyoutriedyoga, Apr 3, 2024, 2 replies, in forum: Other health news and research
  6. Haveyoutriedyoga
    Post

    Orthostatic intolerance occurring together with a hypoglycemia-like state

    I get 'mild' hypos which make me feel and be very wierd, I have had the standard GP blood tests done for that and did my own finger trick testing...
    Post by: Haveyoutriedyoga, Mar 18, 2024 in forum: General and other signs and symptoms
  7. Haveyoutriedyoga
    Post

    MEA are updating their Disability Rating Scale - they are asking for comments on current version

    The problem is that many assume that being 'only a bit' disabled isn't a big deal, actually it's a huge deal
    Post by: Haveyoutriedyoga, Mar 17, 2024 in forum: General ME/CFS news
  8. Haveyoutriedyoga
    Post

    Motorized blind tilt for venetian blinds

    It works, I like it, only thing someone might need to consider is that it makes a whirring noise when it works, made me wake up with a bit of a...
    Post by: Haveyoutriedyoga, Mar 17, 2024 in forum: Home adaptations, mobility and personal care
  9. Haveyoutriedyoga
    Post

    Motorized blind tilt for venetian blinds

    Lol! I've studied reviews and ordered one, will report back.
    Post by: Haveyoutriedyoga, Mar 14, 2024 in forum: Home adaptations, mobility and personal care
  10. Haveyoutriedyoga
    Thread

    Motorized blind tilt for venetian blinds

    Has anybody used a motorized blind tilt? I have a venetian blind in my bedroom, in about a month the sun will rise earlier than I want to wake up...
    Thread by: Haveyoutriedyoga, Mar 12, 2024, 6 replies, in forum: Home adaptations, mobility and personal care
  11. Haveyoutriedyoga
    Post

    Pregabalin

    I recently started it and after the first few days noticed a decrease in anxious energy which is necessary at the moment. I also just had two dinners.
    Post by: Haveyoutriedyoga, Mar 5, 2024 in forum: Drug and supplement treatments
  12. Haveyoutriedyoga
    Post

    A Review of BMJ Best Practice Document on Chronic Fatigue Syndrome by Professor James Baraniuk

    Planning to rest!
    Post by: Haveyoutriedyoga, Feb 28, 2024 in forum: General ME/CFS news
  13. Haveyoutriedyoga
    Post

    A Review of BMJ Best Practice Document on Chronic Fatigue Syndrome by Professor James Baraniuk

    Every time Pacing and energy management and activity planning is recommended I want to see it clearly stated that this is likely only to be...
    Post by: Haveyoutriedyoga, Feb 28, 2024 in forum: General ME/CFS news
  14. Haveyoutriedyoga
    Post

    Subjective measurement of functioning

    I will do that - include travel in the hours and also account for the 'being in an office/public environment' element.
    Post by: Haveyoutriedyoga, Feb 27, 2024 in forum: Monitoring and pacing
  15. Haveyoutriedyoga
    Post

    Subjective measurement of functioning

    It also doesn't specify whether working means going to a place of work or working from home, going to a place of work adds an entirely new level...
    Post by: Haveyoutriedyoga, Feb 27, 2024 in forum: Monitoring and pacing
  16. Haveyoutriedyoga
    Post

    Subjective measurement of functioning

    It is for personal use only, a quick daily scoring so that I can keep an eye on changes and associate them with any medication/other changes I...
    Post by: Haveyoutriedyoga, Feb 27, 2024 in forum: Monitoring and pacing
  17. Haveyoutriedyoga
    Post

    Subjective measurement of functioning

    This just goes to show how many predictions and decisions we have to make on an hourly basis, it's so complicated!
    Post by: Haveyoutriedyoga, Feb 27, 2024 in forum: Monitoring and pacing
  18. Haveyoutriedyoga
    Post

    Subjective measurement of functioning

    I might split it up to physical and mental, thanks. I tend to achieve the capacity I think I have, as in I max out according to what I think I...
    Post by: Haveyoutriedyoga, Feb 27, 2024 in forum: Monitoring and pacing
  19. Haveyoutriedyoga
    Thread

    Subjective measurement of functioning

    I am struggling to interpret the 'functioning' bit of the Bateman Horne subjective rating tool which asks you to rate your functioning for that...
    Thread by: Haveyoutriedyoga, Feb 27, 2024, 9 replies, in forum: Monitoring and pacing
  20. Haveyoutriedyoga
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    This! Sometimes after everybody airs their grievances and reflects honestly and openly on what has happened so far it can unlock new ways to move...
    Post by: Haveyoutriedyoga, Feb 26, 2024 in forum: ME/CFS research news
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