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Nothing really happened with it. It seems like Polymalgia was stated as a differential diagnosis. I then went on to see a Rheumatologist who said I could not have it due to my age. It can happen to younger people, but it is considered a rare occurrence. It’s something to revisit at a later stage...

That doesn’t sound correct. Did they mention that during your initial inquiry or during your Care Assessment? Many people shower and wipe themselves while still requiring a caregiver. When it comes to public services, most are implementing cost-cutting measures to reduce the number of claimants...

I'm struggling to keep up, but I recall there was a study on neurovascular coupling (NVC) in people with ME. Is anyone aware of any updates?

Agreed. I was not aware of the lack of proper trials. It's a dilemma that patients encounter in medicine: should one refuse medical care because of inadequate evidence or follow instructions in the hope that their health will improve based on what is likely to be supported by clinical...

The field of CFS research and medicine is significantly underfunded and neglected, with psychosomatic medicine taking the forefront. I am uncertain if the same issues are present in Autonomics research and medicine, but there should be a higher standard for the scientific basis of medical advice...

I was under the impression it helps because the Autonomics lead at a well-known neurology hospital recommends increasing salt intake to address low blood volume as well. It seems odd that the medical advice is baseless.

The UCLH RLHIM fatigue service provides non-pharmaceutical and holistic therapy. I’m not sure why this isn’t advertised, but you can call the administrative team and ask about their service or ask your GP to request the clinics service policy. IMO you may as well see someone specialising in rain...

From my conversations with other people, it seems like every local authority has its own way of doing assessments. Have you considered reaching out to local health support groups to learn what's been helpful for people in your area when they need support? In my experience, medical evidence was...

It sounds like to me what they are saying is, “Try not to have your seizures in front of people in case you find out they are actually real ones and witnesses can corroborate your story during litigation against us.”

The approach to treating concussions and post-concussion symptoms may differ depending on whether a brain injury specialist is part of the patient's care team. Typically, TBI neurologists specialised in concussions provide guidance on rehabilitation when symptoms persist over time. As far as...

What is the relevant level? I've come across literature that says axonal injury/subtle damage occurs at different levels and is permanent, but depending on the level, it cannot always be seen via imaging. Are subtle changes to brain function that arise from subtle damage FND? [Edited for clarity]

I’m leaning towards the idea that PEM has something to do with insufficient metabolic pathways.

This post, in particular, suggests he isn’t writing to the journal.

This definitely looks like something that needs to be addressed.

It reads as though the symptoms are attributed to lesions located on the same side.

I just think it is a useless way of saying there is nothing wrong with your brain, it's all in your mind. The "software" is the mind.

So what is the current medical consensus about Encephalopathy’s that are not structural? Because as it stands the term Encephalopathy describes abnormal brain functioning as well as structure. Can transient symptoms also arise from abnormal neurological functioning of the brain?

Despite this evolution, in many cases, the explanation for FND tends to be difficulty coping with emotions. Perhaps there is a move away from overreliance on past events as triggers to include what could be perceived as current ones, such as someone not being able to cope with the loss of a...

It was eye-opening because I am shocked that this is the foundation of thinking for what ME/CFS is being made out to be. FND is mainly referred to as a 'software' issue as if it's too complex for anyone other than the researchers to understand. Yet, in this paper, it has been clearly explained...

I found the whole paper eye-opening. I wasn't sure how much I could include on this site, but it is definitely worth a read.