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  1. J

    Delayed Onset Muscle Soreness Is, in Fact, Neural Microdamage Rather Than Muscle Damage (2020) Sonkodi et al

    Could it be due to contracting or flexing your muscles during the night. I believe that is what is happening to me. I sometimes wake up with sore and tight muscles and feels like I had been flexing them all night. I can replicate or intensify the feeling by temporarily flexing the muscles for a...
  2. J

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    After a long term followup 4 years later: 40% of SARS-CoV (2002 epidemic) survivors still reported Chronic Fatigue 27% of SARS-CoV (2002 epidemic) survivors met CDC critera for ME/CFS https://www.ncbi.nlm.nih.gov/pubmed/20008700/
  3. J

    Question: Coronavirus & home sewn masks?

    These filters would have to be cut down to size to fit any mask. Furnace filters come in a vast variety of sizes, but are on average are 12"x16." But have an accordion fold, so they are likely even larger when layed flat. So, many masks filters can be cut from 1 furnace filter. This is just a...
  4. J

    Question: Coronavirus & home sewn masks?

    Also, this paper here by David Derry, MD PhD, suggests that masks used should be sprayed or soaked in iodine solution. https://pdfs.semanticscholar.org/bc37/c48fb2babb83d333d9e4193bf7960040222d.pdf (also for protection, should rub iodine solution in your nostrils with q-tip like these mice...
  5. J

    Question: Coronavirus & home sewn masks?

    I suggest making masks that can accept a sheet HEPA or MERV 16 furnace filter inside. This can reach or exceed n95 masks. You can't make whole masks out of it because they may be made of hazardous (to breath) fibers if cut.
  6. J

    Heart Rate Variability and ME/CFS

    What treatment approach did you use? Submerging face in ice water, breathing, humming, gargling? How long did you persist at this? Did you notic any other changes besides your irregular hearbeats?
  7. J

    Intermittent cloud urine anyone?

    Yes. I have this. But it's only on my first morning urine. Not every morning, but more mornings than not. I drink a lot of water during the day and haven't noticed at any other time.
  8. J

    Gulf war syndrome vs "ME/CFS"

    See this video. About 11:45 she talks about the differences. https://forums.phoenixrising.me/threads/discovery-forum-2017-dr-nancy-klimas.61154/
  9. J

    Heart Rate Variability and ME/CFS

    Interesting stuff. I have been shopping the past couple weeks for a HR monitor to do HRV tracking! I'm going to get the Polar H10. Have you tracked your HRV overnight while sleeping? To try and increase parasympathetic tone, have you tried or heard of transcutaneous vagus nerve stimulation...
  10. J

    Hello! Fitness tracker recommendations?

    I'm considering the Garmin Vivosmart 4. It can meaure pulse oximetry and sleep phase, which is pretty cool. It can also do HRV or its own version of it.
  11. J

    Jen Brea: My ME is in remission

    I agree. Maybe some ME/CFS patients who are already have diagnosed CCI and are planning to have the surgery should contact Davis and submit blood/serum samples. If they have a dramatic remission like Jen, it may be worth doing a retroanalysis of pre- and post-surgery case study of those...
  12. J

    M.E. As a runner & HR findings.

    Yes, they can. But there are a lot of iPhone apps that can analyze your heart rate data and use that to measure/calculate your HRV.
  13. J

    M.E. As a runner & HR findings.

    If you have your old HR data, you might be able to feed that data into HRV apps to analyze your prior HRV. I don't know how exactly though.
  14. J

    M.E. As a runner & HR findings.

    @philw44 and @feeb have either of you tracked your HRV with your training?
  15. J

    M.E. As a runner & HR findings.

    Be prepared for a bunch of people to criticize you and say, "You don't have ME/CFS."
  16. J

    2 metabolic traps/2 types of ME/CFS

    Or it's just me/cfs or fatgue/PEM on the cellular level constrained to different areas of the body, ie: the brain rather than the muscles.
  17. J

    Researcher Interactions Patient Representative Reports from Dr Karl Morten's collaborative group, Oxford, UK

    Interesting. Did they say what temperature they heated the plasama to? I wonder if Hyperthermia Treatment (commonly used for Lyme and mostly in Europe) would be helpful for patients. (Unlikely, I think, as it would likely trigger a crash.) Do you have Pawel's full name? Or links to any of his...
  18. J

    How many of you have cats and how many have been tested for cat scratch disease?

    Never had cats but spent summers on relative's farm with cats. I've been tested and it showed I was negative. However, the testing for it is not all that reliable.
  19. J

    Blog: 'Summary so far of "Something in the blood"' by Simon McGrath

    Which is why I think a case study use of the Hemopurifier to see if it cleans the "something in the blood" is worth trying and funding. We need to write letters to Aethelon Medical about the potential of their Hemopurifier product.
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