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  1. Shadrach Loom

    Let's talk wheelchairs and mobility scooters

    https://www.gov.uk/government/consultations/reviewing-the-law-for-powered-mobility-devices/reviewing-the-law-for-powered-mobility-devices#ministerial-foreword A few interesting things here for UK powerchair and mobility scooter users, perhaps the most exciting is that we should soon to be...
  2. Shadrach Loom

    Phaeochromocytoma and adrenalectomy

    Addendum to this n=1 thread for anyone with an interest in mTORC1, which features in a recent paper from Jacob Bar-Tana, with interesting commentary on the S4ME thread by @DMissa. I finally got the results of post-adrenalectomy genetic testing, and it turns out that I have a loss of function...
  3. Shadrach Loom

    UK Government ME/CFS Delivery Plan consultation

    The comment below the line from David Church is fair, to some extent: A module which explains that the LP is bollocks would be quite handy.
  4. Shadrach Loom

    UK Government ME/CFS Delivery Plan consultation

    You can make it explicit that a response is organisational, or are we looking at different things? E2A: xposted with @Tao Fogger
  5. Shadrach Loom

    UK Government ME/CFS Delivery Plan consultation

    Acute and primary especially …
  6. Shadrach Loom

    UK Government ME/CFS Delivery Plan consultation

    Is there any plan for S4ME to do a collective response, approved by members? That would not preclude us from responding individually as well.
  7. Shadrach Loom

    UK Government ME/CFS Delivery Plan consultation

    When there are real technical issues, IT get to write the line to take, and they will say “issues with a web hosting provider” or similar deflection.
  8. Shadrach Loom

    UK Government ME/CFS Delivery Plan consultation

    Gov.uk is pretty slick as a CMS. Uploading is trivially easy. It’s the one thing that Government Digital Service could actually do right, given that Mike Bracken was poached from the Graun to set it up.
  9. Shadrach Loom

    UK Government ME/CFS Delivery Plan consultation

    Fingers crossed. But in the event of NICE-style last minute shenanigans, it would not be unknown for “technical issues” to be the short-term line to take.
  10. Shadrach Loom

    An exploration of victim blaming in ‘medically unexplained symptoms’: Neoliberalism and the need to justify the self, group and the system 2023, Hunt

    It’s a nice idea, but if the best hope is to distract psychologists, and the only way to do so is by insulting them, I’d prefer another patient group to get the blame!
  11. Shadrach Loom

    An exploration of victim blaming in ‘medically unexplained symptoms’: Neoliberalism and the need to justify the self, group and the system 2023, Hunt

    That may be true. What purpose does a supposed aetiology of victim-blaming tendencies serve, though, if awareness of victim-blaming is all that is needed?
  12. Shadrach Loom

    An exploration of victim blaming in ‘medically unexplained symptoms’: Neoliberalism and the need to justify the self, group and the system 2023, Hunt

    If Hunt’s arguments about the psychopathology of clinicians have any validity, they should apply to absolutely every professional in every context as well, making them reductive enough to be meaningless.
  13. Shadrach Loom

    UK Government ME/CFS Delivery Plan consultation

    The Times article is good, although let down by the description of the symptoms - no PEM. Their writer who lost a daughter has a comment piece as well. I’ll post it as an archive link when there is a live thread about the delivery plan itself. Comments are the usual - a woman whose CFS was cured...
  14. Shadrach Loom

    USA: “Movie About M.E." and "Banner for Awareness" (formerly "One Name Campaign")

    That partners page going down is a promising sign of backpedalling pacy enough to satisfy even S4ME’s Tour de France spods.
  15. Shadrach Loom

    USA: “Movie About M.E." and "Banner for Awareness" (formerly "One Name Campaign")

    Absolutely right to hold associations to account for lending support to misguided self-publicists.
  16. Shadrach Loom

    USA: “Movie About M.E." and "Banner for Awareness" (formerly "One Name Campaign")

    To be fair, though, I’d thought of OMF as essentially being just an offshoot of the Davis/Dafoe empire. However neither is listed as a member of staff, so all sorts of mad things might be done without them knowing.
  17. Shadrach Loom

    USA: “Movie About M.E." and "Banner for Awareness" (formerly "One Name Campaign")

    Is it unfair to suspect that Dafoe is being a little disengenuous? The material that was posted was short and accessible - and it highlighted rape as an example of trauma, alongside war and famine.
  18. Shadrach Loom

    A general thread on the PACE trial!

    Does this offer any clues to the identity of the show? Interesting that it’s a specific presenter in the frame, even at this early stage. Maybe a show built around a single reporter, I’d assume on a terrestrial channel.
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