Health Sense article: Why deny patients with chronic fatigue syndrome treatments that can help?, 2022, by Peter White

Posts moved from the NICE guideline thread and the PACE trial thread.

New article from Peter White

https://twitter.com/user/status/1511392013815586820

 

That article is billed as summer2021 but I did not know of its existence. Did @Caroline Struthers ?

Edit: No it seems to be current in the April 2022 Newsletter.

Same old tired non-sequiturs.

 

Nope. I had no idea about this...a most interesting development!

 

Example —

 

Merged from the PACE trial thread

https://www.healthsense-uk.org/publications/newsletter/newsletter-118/273-118-white.html

Peter White penned this anemic missive defending PACE and the provision of CBT/GET. Amidst a plethora of gems, he seems to argue that he and other BPS ideologues aren’t conflicted because they say they aren’t. It all makes perfect sense if you don’t think about it.

I hope @dave30th dissects this. Also, I saw this article being promoted by Alan Carson because of course it was.

 

I submitted a post regarding this blather in a different thread, so the moderators may want to move it.

but I find it astounding that White glosses over the conflict of interest issue by arguing that physicians wouldn’t want to provide ineffective treatments to patients. Of course they wouldn’t, but biases influence whether or not physicians would deem a particular intervention effective. This elementary logic seems so self-evident that only cult like delusion would blind one to its existence. Hence the manifesto by White and the apparent endorsement by Carson.

 

To be fair he/these statements get a fair bashing from patients - thanks.

As for this statement*; I recall people on this forum stating that they'd use any treatment that works ---- it's just that we don't have any.
*"Why deny patients with chronic fatigue syndrome treatments that can help?"

 

Yes, the discussion of the response from therapists that they don't do his GET anyway suggests a certain peevishness has set in. Even the handmaidens turning against.

 

Bullshitting without consequences is not normal. No one is denied access to anything, a medical referral is not needed as CBT/GET aren't even medical treatments. If someone wants a course of CBT for themselves, or take up an exercise program, they can do it easily, there are even many apps available today, it's not as if it changes anything. Supervision of any kind is not needed for any of this stuff.

GPs not being able to coerce people into complying with a useless treatment is a completely separate thing from not recommending it while it's still easy to use for anyone who wants to.

This bullshit about depriving people of something that is widely available is a special kind of big lie. It's very revealing that no one calls them out on this. They truly have no shame, but then again when you are used to BS all the time it probably becomes such a habit it feels completely normal. It's basically learned shamelessness.

https://twitter.com/user/status/1511392013815586820

 

The denying patients something-angle is interesting given all the things Peter White advocated patients be denied e.g.

"A Selection of points the Barts CF Service made during the NICE Guidelines for CFS / ME"
https://meagenda.wordpress.com/2007...g-the-nice-guidelines-for-cfs-me-tom-kindlon/

 

I don't think the people at Health Sense know what they're doing either. This is what they think they do. Instead they promote stuff from patient-hating charlatans.

 

I believe the official term is incompetent, patient hating charlatans

 

This post and a couple of replies copied from the Paul Garner thread.

https://twitter.com/user/status/1512117281668665350


Will leave this here and go for my tea, as I'm in a horrendous mood and might say something I regret.

 

Just tweeted Caroline who may be off line with covid.


Barbieloo
@BarbR666
·
3m
@Healthy_Control
Caroline, FYI you have beenPGtipped!@PaulGarnerWood An experienced specialist in CFS/ME speak Faulty ideology distorted NICE's procedures Graded exercise therapy helps "by gradually removing the fear of engaging in usual everyday#MECFS #LongCovid -8 citations fu!

 

Actually, faulty ideology did try to distort NICE's procedures by means of a text message or email to Gill Leng, but it didn't work out.

Caroline and I (also with Covid again) have raised our eyebrows in the HealthSense chat room.

 

Is anyone taking up the task of pointing out the problems with White's ideas? Could David Tuller write an article in their newsletter? I'm really tired of the constant dishonest spin by PACE authors.

 

The best place to counter White's article may be in the next HealthSense Newsletter. I am surprised they published this but they have a 'right of reply' policy. We may be able to do something but this is such old ground it is hard to know what more to say. Carson has been asked to explain his criticism of Caroline original piece and seeing what he has to say may help.

 

haha. Yes, I find it hilarious (maybe that's not the right word) that his Tweets have no punctuation or grammar and this one seems to be missing a final word....usual everyday what Paul???