January 2025 surveillance of [ME/CFS]: diagnosis and management (NICE guideline NG206)

I think it's a pity that they didn't at least acknowledge the potential gap / need for clarification in the guideline with respect to nutritional support for very severely ill pwME.

So if not added there, in view of Maeve's death, here's what I think they should have considered:

Management of Nutritional Failure in People with Severe ME/CFS: Review of the Case for Supplementing NICE Guideline NG206 (Jonathan Edwards)

Direct link to Qeios article: https://www.qeios.com/read/T9SXEU

 

Well, that sure is one way of working on problems: no research, no bother. They make research contingent on doing research. By not doing needed research, no need to do needed research.

Technically it's correct that no new research has been done here. And it's a pathetic failure, dereliction of duty. But the dereliction of duty is so total that there's no one in a position to do something about it. It's a kind of derivation on Dunning-Kruger and the Peter principle: with people having been elevated far above their merit in charge, there is no one actually in charge to notice that no one is doing anything worth doing.

You could seriously do an entire graduate program on this, a failure of management, of leadership, of ethics and basic professionalism. The failure is just completely off any charts you can think of.