[Poll] How does exertion affect sleep? (Read instructions in first post)

Edit: The poll is now up.

Please read these details before answering:

Only answer if you experience PEM. Consider what would happen if you were to do enough physical or cognitive exertion to trigger PEM or worsen ongoing PEM. How would your sleep that same night compare to the previous night(s). Choose options which follow such exertion at least half the time.

If you select "I cannot sleep at all":

• Also select "My total sleep time is decreased"
• Do not select "I fall asleep later"

If exertion causes a change which is not listed, select the "Other changes" option. If exertion does not change sleep compared to days without exertion, select the "Exertion does not cause my normal ..." option.

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No need to read the rest, it was from planning the poll.
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I'm hoping to add a poll to this thread to see how many people with PEM notice an effect on their sleep the night after significant exertion. It'll be a poll where you can select multiple options. Hoping to get feedback on wording and options before I make it live. If there are other sleep changes you think should be added as options, let me know.

Here's the draft:

For people who experience post-exertional malaise, what effects does significant physical or cognitive exertion have on your sleep that night, at least sometimes?

• Exertion does not cause my normal sleep pattern to change (select even if "normal" sleep is low quality)
• I fall asleep significantly later
• I wake up significantly earlier
• I wake up during the night more frequently
• I have more night sweats
• I notice other changes in my sleep

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Edit: Should probably include falling asleep earlier and waking up later too.

 

Good questions! Maybe add:

• I cannot sleep at all

Usually true for me after a significant exertion.

 

Similar(ish) previous polls.

PEM poll part 1 (physical exertion)

PEM poll part 2 (mental exertion)

Poll: Sleep and cognitive function

[Sleep Poll] Do you experience insomnia or somnolence with your ME.

 

Poll with a related question: Poll: In pwME that report worsened sleep following exertion/excessive activity (or during PEM) what happens to your sleep during an acute infection?

 

Interesting. Looks like about 70-75% have "increased problems sleeping" after mental exertion and similar percentage after physical exertion. Maybe this poll could get more fine grained and include some newer members.

 

Maybe options for more or less dreaming as well.

 

How would you recommend incorporating this?

 

Cognitive overexertion negatively affects my sleep but this also affects healthy people.

Physical overexertion does not negatively affect my sleep. I can have a great nights sleep but that won't prevent delayed PEM if I went over my boundaries.

 

An option like this?

"I get a "tired but wired" feeling the same day of the exertion before bed that feels like having taken a stimulant like caffeine."

 

Yes, I'm curious about the first night. No doubt sleep is affected for multiple days, but I think it's interesting to focus in on the first sleep, because this is before a crash has started for many people.

 

I'd like "first night" to be included so that people don't answer about subsequent nights so the poll is more focused on a single thing.

What about: How is your sleep the first night after enough exertion to cause a PEM crash?

Edit: I forgot it should include how it changes compared to other nights. This still fits the length maximum: "How does your sleep change on the first night after enough exertion to cause a PEM crash?"

 

Ok, I just looked at the 'poll'. My poor nights sleep from cognitive overexertion is a wired/tired brain that won't shut off that results in insomnia. This is the first symptom I experienced within 3 weeks from returning to work after 'recovering' from PVFS in 1992. After resigning from work, my sleep returned back to normal 2 weeks later.

 

Is there a reason you don’t include
“My overall sleep duration is longer”
“My overall sleep duration is shorter”
“My overall sleep duration is unchanged”

Also I would be very confused on how to answer this. In the initial stages of PEM I’m all wired (and this coincides with allergic reactions for some reason that prevent me from sleeping), so I get way less sleep than usual, while in late stages of PEM I have hypersomnia and sleep most of the day and night. If PEM is the entire crash period, then my sleep looks wildly different in different parts.

 

I could include the first two. Is the third needed if there is this: "Exertion does not cause my normal sleep pattern to change (select even if "normal" sleep is low quality)"

If someone has issues with other aspects of sleep but not duration, that will show up as the percentage of people who did not vote for longer or shorter.

Basically trying to ask how sleep directly after exertion compares to the previous night(s). So it should be only about the beginning of PEM (or beginning of a new level of PEM if exerting during another crash).

 

I’d have difficulty answering a ‘first night’ question. I can’t be that fine grained really. I would say that I have a mixture of all of these after exertion, but it varies presumably depending upon many variables which tbh I cannot be sure of:

• Difficulty getting to sleep
• Less restful sleep
• Wake more often
• Wake earlier
• Sleep less overall
• Don’t sleep at all

Then associated I can have all sorts of things, some more night specific some less so including

• Feeling tired but wired
• Shakes/convulsions
• Pain and Difficulty getting comfortable
• Restless less
• Temperature regulation problems/fluctuations (feeling hot)
• Cardiovascular symptoms

Or just peacefully lying there drifting in and out of something and not really sleeping but not being too bad either!

Not sure if this helps but there may be some useful words for you here.

 

That is pretty much exactly what I experience @hotblack Just that since I became very severe, it now seems to always coincide with allergic reactions causing all sorts of bodily symptoms. Diagnosed as MCAS, but I’m not sure that really means anything.

 

Since this allows multiple selections, maybe answer any that happen at least sometimes. I know for me, even though insomnia is common the night after exertion, there are days after intense exertion where inexplicably I fall asleep just fine.

Thanks, I'll try to include these as options.