Psychologically informed physiotherapy as part of a multidisciplinary rehabilitation program for children & adolescents with [FND], 2020, Kasia et al

Full title: Psychologically informed physiotherapy as part of a multidisciplinary rehabilitation program for children and adolescents with functional neurological disorder: Physical and mental health outcomes

Paywall, https://onlinelibrary.wiley.com/doi/abs/10.1111/jpc.15122
Sci hub, unable to access via at time of posting.

 

With this group of researchers it is their POV that informs any conclusions anyway.

There is no science here. They can call it research, they can get it printed up in a journal--
but regardless this is no more than opinion, thinly disguised, based on preconceptions they cannot prove. I think they believe they have 'proved' them but they use the same non-science methods and thinking to create proof.

This group of FND, MUS researchers seem to lack the capacity to understand the patient experience of illness always viewing symptoms through the lens of their preconceptions.

Currently the exposure of this wrong thinking can be found in the many people who are getting ill with long-covid who were taught to believe in the crap this group spouts. When faced with symptoms that yield no unusual lab results yet affect their lives profoundly they finally realise what the experience is and that it isn't amenable to the trite solutions that have been proffered.

These researchers just don't know what they are talking about. And I'm not even sure they know how completely they are making this stuff up.

I also think it's part of the cult of (here I'm not sure I know the right words) but a sort of 'life is good /positivity / push to make the most or best of everything. This means thinking their job is super ultra important to the point of making the sick person their project and failure is not an option because that would be negative and not lead to job satisfaction. And job satisfaction is what is the really important bit when the patient leaves.

That bit might sound strange but I have read stuff (not research but articles) where they comment as much cheer-leading for each other (metaphorical high fives) and feelings of a sense of belonging and accomplishment. I'm not saying this type of feeling is only found among this group just that it seems to interfere with clarity of thought with regard to the actual outcomes of their efforts.

But then again it's enough to put it down to the lack of scientific rigour at any rate.

 

More copy-paste research from the clown factory. This exact kind of experiment has been done hundreds of times, probably thousands. That this is still getting funding and approval is by now a massive failure of the regulatory process and fiscal responsibility, wasting resources on pet projects of no scientific merit.

The approval board, the funders, the reviewers, the journal, the oversight, everyone is failing massively at upholding their responsibility. All the funding wasted on this should be returned, out of the respective departments' future budgets if need be. Accountability is badly needed here, there simply isn't any at all.

 

Kids.
The amount of harm this kind of thing can do should be the subject of a study.

 

How to breed mistrust of experts 101. This is a large part of why some people distrust experts, when "expertise" falls completely on its face. Accountability. Now.

Being exposed to blatant charlatanism like that will wreck anyone's perspective of the very idea of expertise. And all for damn nothing, just to keep the clown show going.

 

Children feel massive distress when they think they have failed their parents. As adults it is difficult to not feel guilty when you have been assured you will be well if you follow their programme correctly but don't improve so to put this pressure on kids is appalling.