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Advocacy Projects and Campaigns

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  1. Andy
    Sticky

    International: Science for ME social media posts

    Andy, May 1, 2022 ... 12 13 14
    Replies:
    271
    Views:
    17,070
    Andy
    Sep 23, 2024 at 10:12 AM
  2. Hutan
    Sticky

    Australia: 2022 Parliamentary inquiry into Long Covid and repeated covid infections - report issued April 2023

    Hutan, Sep 30, 2022 ... 2 3 4
    Replies:
    73
    Views:
    10,965
    Art Vandelay
    Feb 16, 2024
  3. Robert 1973

    Tom Kindlon nominated for an honorary degree at Trinity College Dublin

    Robert 1973, Feb 28, 2024
    Replies:
    14
    Views:
    59,543
    Tom Kindlon
    Apr 2, 2024
  4. Andy

    Dialogues for a neglected illness - videos on experiences of people with ME (funded by Wellcome Foundation)

    Andy, Oct 15, 2018 ... 11 12 13
    Replies:
    242
    Views:
    42,301
    Andy
    Oct 28, 2023
  5. Andy

    UK: Priority Setting Partnership for ME/CFS

    Andy, Mar 10, 2020 ... 10 11 12
    Replies:
    232
    Views:
    25,904
    bobbler
    May 21, 2022
  6. Keela Too

    Feedback from Stakeholder Engagement Workshop for the NICE guidelines on ME, Jan 2018

    Keela Too, Jan 16, 2018 ... 6 7 8
    Replies:
    149
    Views:
    20,666
    NelliePledge
    Feb 16, 2018
  7. Joh

    Millions Missing May 2018 - in Germany

    Joh, Feb 10, 2018 ... 7 8 9
    Replies:
    175
    Views:
    18,832
    Trish
    Jun 5, 2018
  8. Andy

    Blog: Changing the narrative #1: exploring a new approach to strategic communications in the ME community, by Valerie Eliot Smith

    Andy, Jan 7, 2019 ... 8 9 10
    Replies:
    181
    Views:
    18,051
    Robert 1973
    Feb 15, 2019
  9. Webdog

    Healthwise to "retire the GET/CBT topics" from medical content

    Webdog, Apr 11, 2018 ... 4 5 6
    Replies:
    110
    Views:
    15,431
    Denise
    Feb 2, 2019
  10. Keela Too

    Format of NICE stakeholder meeting?

    Keela Too, Dec 27, 2017 ... 5 6 7
    Replies:
    133
    Views:
    14,385
    Andy
    Jan 17, 2018
  11. Allele

    MUST Fight MUS

    Allele, Feb 25, 2018 ... 2 3 4
    Replies:
    79
    Views:
    12,628
    Inara
    Jun 22, 2018
  12. Kalliope

    Donation to Tuller/research as respond to our critics

    Kalliope, Apr 9, 2018 ... 4 5 6
    Replies:
    103
    Views:
    12,570
    Kalliope
    Apr 28, 2018
  13. Andy

    #ThereForME campaign / Building an NHS that’s there for Long Covid and ME

    Andy, Jul 23, 2024 ... 9 10 11
    Replies:
    200
    Views:
    12,535
    rvallee
    Sep 25, 2024 at 4:37 PM
  14. NelliePledge

    Jen Brea tweets about U.K. Unrest campaign

    NelliePledge, Mar 27, 2018 ... 3 4 5
    Replies:
    97
    Views:
    12,522
    Diluted-biscuit
    Apr 1, 2018
  15. Sly Saint

    May 2019 - Awareness Week including Millions Missing

    Sly Saint, Feb 13, 2019 ... 3 4 5
    Replies:
    97
    Views:
    11,858
    Kalliope
    Jun 25, 2019
  16. Robert 1973

    United Kingdom: Independent SAGE

    Robert 1973, Jan 18, 2022 ... 3 4 5
    Replies:
    86
    Views:
    10,848
    Kitty
    Jun 24, 2023
  17. Cheshire

    Improving images used to depict ME/CFS

    Cheshire, Nov 6, 2017 ... 2 3 4
    Replies:
    62
    Views:
    10,645
    Lidia Thompson
    Jul 29, 2023
  18. Andy

    MEAction: Join Our Values and Policy Initiative! September 2019

    Andy, Sep 25, 2019 ... 2 3 4
    Replies:
    72
    Views:
    9,907
    Trish
    Sep 6, 2020
  19. Andy

    Action for M.E. hosts DWP spotlight training

    Andy, Jan 7, 2019 ... 2 3 4
    Replies:
    78
    Views:
    9,534
    Trish
    Jan 18, 2019
  20. Adam pwme

    New Video - The PACE trial - Part 1: Moving the goalposts

    Adam pwme, Jul 29, 2019 ... 3 4 5
    Replies:
    88
    Views:
    9,407
    Amw66
    Oct 18, 2019
  21. ME/CFS Skeptic

    ME Action: The EU committee on petition is preparing a resolution on ME

    ME/CFS Skeptic, Feb 9, 2020 ... 2 3 4
    Replies:
    68
    Views:
    8,831
    ME/CFS Skeptic
    Jun 18, 2020
  22. Andy

    A potential S4ME project: What are the basic science facts that ME advocates need to know and understand?

    Andy, Oct 5, 2019 ... 2 3
    Replies:
    59
    Views:
    8,515
    Trish
    Dec 3, 2022
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