Advocacy

Advocacy Action Alerts

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Yann04
Very severe French patient needs help
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157
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General Advocacy Discussions

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218
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Utsikt
3 Levers to pull to solve a disease
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218
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4.4K

General disability topics and advocacy

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162
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1K
MrMagoo
MS Trust reel on their disability scale/measure being discussed
Use this forum for wider disability topics that may include but are not exclusively about ME.
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162
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1K

Advocacy Projects and Campaigns

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311
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7K
T
International: Science for ME social media posts
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311
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7K

Petitions

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62
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2.6K
Yann04
Petition to request updating of the description of ME/CFS in Kumar and Clark’s Clinical Medicine textbook.
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62
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2.6K

Fundraising

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127
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Yann04
Charity “Donation Matching”
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127
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Open Letters and Replies

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29
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Science For ME
S4ME: 2023 Open Letter, complaints, petition updates regarding Cochrane and the CFS Exercise Therapy Review
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29
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MEpedia

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19
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811
forestglip
Tool to see daily view counts on popular pages of MEpedia
A subforum where people can communicate about MEpedia
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19
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811
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