Recent Activity
Activity stream for all registered members at Science for ME.
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bobbler liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I’m thinking more social media campaigning, going viral with a slogan, then releasing a press release what is “psychwashing”? The...
May 28, 2025 at 11:37 PM -
Sean liked Jonathan Edwards's post in the thread Preprint A Proposed Mechanism for ME/CFS Invoking Macrophage Fc-gamma-RI and Interferon Gamma, 2025, Edwards, Cambridge and Cliff.
What I think might be part of the story is that a 'malaise' response is engineered by the immune system using cells and mediators that...
May 28, 2025 at 11:36 PM -
Trish liked Hutan's post in the thread Tactile and interpersonal sound symbolic associations in patients with multiple somatic symptoms 2025 Jiang et al.
In my opinion, these researchers are treating patients of this clinic, the Department of Psychosomatic Medicine of Shanghai East...
May 28, 2025 at 11:36 PM -
Sean liked Kitty's post in the thread Preprint A Proposed Mechanism for ME/CFS Invoking Macrophage Fc-gamma-RI and Interferon Gamma, 2025, Edwards, Cambridge and Cliff.
Yes, I've been wondering that. To go back to psoriasis again, once you've got it you tend to keep getting it. But first line...
May 28, 2025 at 11:36 PM -
Starlight liked Jonathan Edwards's post in the thread Preprint A Proposed Mechanism for ME/CFS Invoking Macrophage Fc-gamma-RI and Interferon Gamma, 2025, Edwards, Cambridge and Cliff.
So would I. I think the worry is justified but I think the playing field has to be kept seriously level, and not least to make it plain...
May 28, 2025 at 11:36 PM -
Sean liked Snow Leopard's post in the thread Preprint A Proposed Mechanism for ME/CFS Invoking Macrophage Fc-gamma-RI and Interferon Gamma, 2025, Edwards, Cambridge and Cliff.
Do the T-cells become resident in those tissues, is that why we don't consistently see interferon gamma turning up in cytokine studies?...
May 28, 2025 at 11:36 PM -
Robert 1973 liked Jonathan Edwards's post in the thread Preprint A Proposed Mechanism for ME/CFS Invoking Macrophage Fc-gamma-RI and Interferon Gamma, 2025, Edwards, Cambridge and Cliff.
To be honest it had not crossed my mind that this paper would be passed to caregivers. It is a discussion of theoretical models for the...
May 28, 2025 at 11:36 PM -
Sean liked Jonathan Edwards's post in the thread Preprint A Proposed Mechanism for ME/CFS Invoking Macrophage Fc-gamma-RI and Interferon Gamma, 2025, Edwards, Cambridge and Cliff.
So am I. I am only speculating on general strategies. I was not relating it to any specific treatment.
May 28, 2025 at 11:36 PM -
Trish liked Hutan's post in the thread Tactile and interpersonal sound symbolic associations in patients with multiple somatic symptoms 2025 Jiang et al.
As I started skimming this study, I was wishing the authors had decided to not bother with work and had instead chosen to stay home to...
May 28, 2025 at 11:35 PM -
Sean liked EndME's post in the thread Preprint A Proposed Mechanism for ME/CFS Invoking Macrophage Fc-gamma-RI and Interferon Gamma, 2025, Edwards, Cambridge and Cliff.
I haven't got around to reading the full study yet and I probably won't get around to reading everything written here in this thread too...
May 28, 2025 at 11:35 PM -
Starlight liked Trish's post in the thread Preprint A Proposed Mechanism for ME/CFS Invoking Macrophage Fc-gamma-RI and Interferon Gamma, 2025, Edwards, Cambridge and Cliff.
Quotes from the article: The evidence for long-term epigenetic or ‘learnt’ neuroplastic change in ME/CFS remains at present...
May 28, 2025 at 11:35 PM -
Sean replied to the thread Preprint Skeletal muscle properties in long COVID and ME/CFS differ from those induced by bed rest, 2025, Charlton, Wust et al.
It certainly is. One the most important and under appreciated clues about ME/CFS is that we are not much more (classically)...
May 28, 2025 at 11:34 PM -
Starlight liked Jonathan Edwards's post in the thread Preprint A Proposed Mechanism for ME/CFS Invoking Macrophage Fc-gamma-RI and Interferon Gamma, 2025, Edwards, Cambridge and Cliff.
Charles Shepherd asked if I had a lay summary. I think that is quite tricky. The paper is really an attempt to lay out a framework for...
May 28, 2025 at 11:34 PM -
Starlight liked Jonathan Edwards's post in the thread Preprint A Proposed Mechanism for ME/CFS Invoking Macrophage Fc-gamma-RI and Interferon Gamma, 2025, Edwards, Cambridge and Cliff.
I doubt that will be a problem but if gamma interferon is being used locally by transient T cell passage through tissues then blood...
May 28, 2025 at 11:34 PM -
Jacob Richter liked JemPD's post in the thread Preprint A Proposed Mechanism for ME/CFS Invoking Macrophage Fc-gamma-RI and Interferon Gamma, 2025, Edwards, Cambridge and Cliff.
This may be a total red herring in the context of this paper, if so apologies, but I always wondered about this, mainly because the...
May 28, 2025 at 11:31 PM
