Recent Activity
Activity stream for all registered members at Science for ME.
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EndME liked Kitty's post in the thread Why are places allowed to not follow the NICE guidelines?.
I don't know which clinics still offer it, only that I still come across posts in social media groups from people receiving CBT. Some...
Mar 25, 2025 at 8:29 PM -
Yann04 replied to the thread Objectively testable physiological symptoms?.
If I take common LC symptoms like “diahhrea”, “insomnia”, “acid reflux”. All those are objectively measurable, ie. counting bathroom...
Mar 25, 2025 at 8:27 PM -
SNT Gatchaman liked EndME's post in the thread Cytokine signature associated with disease severity in chronic fatigue syndrome patients, 2017, Montoya et al.
There have already been several studies looking at TGF-beta, so the question would be what could such a study achieve? I'm not sure how...
Mar 25, 2025 at 8:26 PM -
Yann04 liked EndME's post in the thread Objectively testable physiological symptoms?.
I'm not quite sure what objectively tested is supposed to mean in this context. The people that believe that these things are caused by...
Mar 25, 2025 at 8:22 PM -
Yann04 liked forestglip's post in the thread Objectively testable physiological symptoms?.
Many symptoms in long COVID and other post infection conditions, like fatigue, pain, and brain fog, are hard to test for and it's easy...
Mar 25, 2025 at 8:21 PM -
Trish liked Midnattsol's post in the thread Norwegian guidelines in development: help with a literature search.
They also did not rate the quality of the studies. That it is noted there are no studies on hypnosis feels like making ground for...
Mar 25, 2025 at 8:21 PM -
jnmaciuch replied to the thread Do you believe that “viral persistence” is the cause of ongoing MECFS and LC?.
I would expect to see a big difference in cases where Oxidative Phosphorylation is almost completely inhibited as in your examples vs....
Mar 25, 2025 at 8:21 PM -
Peter Trewhitt liked MrMagoo's post in the thread Is it useful to compare CBT in SLE and ME/CFS?.
Strange how they can’t offer the CBT to reverse it, though. It’s actually ideal for some CBT.
Mar 25, 2025 at 8:12 PM -
Peter Trewhitt liked Utsikt's post in the thread Norwegian guidelines in development: help with a literature search.
After reading the conclusion again, I noticed that the only said there’s a need to figure out how to best deliver interventions to...
Mar 25, 2025 at 8:12 PM -
Peter Trewhitt liked Jonathan Edwards's post in the thread Norwegian guidelines in development: help with a literature search.
I doubt it is wrong - same old paternalistic stuff.
Mar 25, 2025 at 8:12 PM -
bobbler liked Peter Trewhitt's post in the thread UK Action for ME - policies, actions and publications - discussion thread.
This is interesting and I wonder if this was wishful thinking or if it was easier for the very very severe to access alternative feeding...
Mar 25, 2025 at 8:12 PM -
bobbler liked Sly Saint's post in the thread UK Action for ME - policies, actions and publications - discussion thread.
Sorting through some paperwork I found a fundraising letter from AfME back in October 2006. In it, it mentions their survey 'Facts and...
Mar 25, 2025 at 8:11 PM
