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Activity stream for all registered members at Science for ME.

  1. Peter Trewhitt liked Mithriel's post in the thread Preventing Post Exertional Malaise - online talk with Staci Stevens and Dr Mark Van Ness - Thurs 22nd Oct 2:30pm.

    If only the clinics here took this approach. And my GP :)

    Oct 24, 2020 at 3:21 PM
  2. Peter Trewhitt liked Trish's post in the thread Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian.

    Thanks for your efforts on this @Caroline Struthers. I feel so powerless in these situations.

    Oct 24, 2020 at 3:20 PM
  3. Peter Trewhitt liked Caroline Struthers's post in the thread Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian.

    You'd have thought wouldn't you? Cochrane changed their withdrawal policy in August 2019 to allow this ridiculous situation to happen....

    Oct 24, 2020 at 3:20 PM
  4. Peter Trewhitt liked Mithriel's post in the thread Join Our #FNDandUS Campaign.

    The only place you ever see such a list of diseases with one cure is on the side of the wagons of snake oil salesmen or the modern day...

    Oct 24, 2020 at 3:20 PM
  5. sb4 liked leokitten's post in the thread Aripiprazole - Abilify.

    There’s also been discussion on the Abilify PR thread regarding its strong 5-HT7 serotonin receptor antagonism and this receptor’s role...

    Oct 24, 2020 at 3:17 PM
  6. sb4 liked leokitten's post in the thread Aripiprazole - Abilify.

    Abilify isn’t a stimulant like methylphenidate or amphetamines. I believe stimulants can sometimes help with certain ME patients if they...

    Oct 24, 2020 at 3:16 PM
  7. cfsandmore liked Barry's post in the thread CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al.

    And the authors' interpretation of their results is completely oblivious to both those possibilities. But I would have no problem with...

    Oct 24, 2020 at 3:12 PM
  8. Gecko liked Mithriel's post in the thread Preventing Post Exertional Malaise - online talk with Staci Stevens and Dr Mark Van Ness - Thurs 22nd Oct 2:30pm.

    If only the clinics here took this approach. And my GP :)

    Oct 24, 2020 at 3:11 PM
  9. cfsandmore liked Barry's post in the thread CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al.

    The problem basically is that their interpretation of their results ignores the reality of those results. None so blind as those who do...

    Oct 24, 2020 at 3:11 PM
  10. cfsandmore liked MSEsperanza's post in the thread CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al.

    Yes, in either case it's clear that it is not an effective treatment. If it did anything good at all it may have improved coping with...

    Oct 24, 2020 at 3:11 PM
  11. Caroline Struthers liked Trish's post in the thread Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian.

    Thanks for your efforts on this @Caroline Struthers. I feel so powerless in these situations.

    Oct 24, 2020 at 3:10 PM
  12. cfsandmore liked Kalliope's post in the thread CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al.

    Yes you're right. Nina E. Steinkopf checked and it turned out a word was missing. Her text is updated as of today with: At the same...

    Oct 24, 2020 at 3:09 PM
  13. cfsandmore liked Snow Leopard's post in the thread CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al.

    Well, it is not as if regularly finding contrary evidence in his studies has ever led Wyller to drop his theory about "sustained...

    Oct 24, 2020 at 3:08 PM
  14. cfsandmore liked strategist's post in the thread CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al.

    One can read these results as the intervention harming patients, or as helping patients to pace themselves better. But which one is the...

    Oct 24, 2020 at 3:08 PM
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