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Activity stream for all registered members at Science for ME.

  1. rainy liked Kalliope's post in the thread News from Scandinavia.

    A follow up article in the newspaper Dagsavisen Fremtiden. Apparently there is a directive in the Labour and Welfare Administration...

    Feb 23, 2020 at 5:50 AM
  2. pteropus liked Trish's post in the thread Assessing Functioning in adolescents with Chronic Fatigue Syndrome: Psychometric properties and Factor Structure of SSAS & SF36 PF, 2020, Loades.

    Stats tests like Pearson's correlation coefficient that they used assumes the data is measured on a linear scale, like height....

    Feb 23, 2020 at 4:09 AM
  3. Milo replied to the thread Another example of claim of a 'cure'.

    There is truly a market for desperate people. The claims of recovery can be marketed. It can be a therapy, a device that is sold or...

    Feb 23, 2020 at 4:01 AM
  4. sea liked Andy's post in the thread McArdle Disease: Clinical, Biochemical, Histological and Molecular Genetic Analysis of 60 Patients, 2020, Raj Joshi et al.

    Open access, https://www.mdpi.com/2227-9059/8/2/33

    Feb 23, 2020 at 2:29 AM
  5. Lidia liked Andy's post in the thread Achieving symptom relief in patients with ME by targeting the neuro-immune interface and inducing disease tolerance (2020) Rodriguez et al.

    Pre-print, https://www.biorxiv.org/content/10.1101/2020.02.20.958249v1 [MEDIA] ETA: Added word, "Pre-print".

    Feb 23, 2020 at 2:04 AM
  6. Michelle liked Perrier's post in the thread Leonard Jason research finds that many young people have ME/CFS (Simon M blog).

    I see your point. However, Parkinson's does not have a test but there are extensive tests which are done before such a diagnosis. (I...

    Feb 23, 2020 at 1:59 AM
  7. Michelle liked InfiniteRubix's post in the thread Leonard Jason research finds that many young people have ME/CFS (Simon M blog).

    I understand this and hear it often, but apart from the obvious role in advancing the research and dealing with ignorance, I am not sure...

    Feb 23, 2020 at 1:59 AM
  8. Michelle liked Perrier's post in the thread Leonard Jason research finds that many young people have ME/CFS (Simon M blog).

    My humble opinion is that we urgently need some reliable diagnostic testing.

    Feb 23, 2020 at 1:59 AM
  9. Michelle liked Webdog's post in the thread Leonard Jason research finds that many young people have ME/CFS (Simon M blog).

    For comparison, a recent estimate based on medical claims data and machine learning gives a predicted prevalence of .857% in the US....

    Feb 23, 2020 at 1:59 AM
  10. Michelle liked Sisyphus's post in the thread Leonard Jason research finds that many young people have ME/CFS (Simon M blog).

    3/4 of 1% seems high, that's higher than the incidence in adults. What are the criteria, and what is the severity threshold? From...

    Feb 23, 2020 at 1:58 AM
  11. Michelle liked Webdog's post in the thread Leonard Jason research finds that many young people have ME/CFS (Simon M blog).

    I suspect some of the younger kids get misdiagnosed with ADHD. Everyone knows about ADHD... few are looking for ME/CFS. As David S....

    Feb 23, 2020 at 1:57 AM
  12. Michelle liked ahimsa's post in the thread Trans-NIH ME/CFS Working Group call with Lenny Jason, March 17th, 11am ET.

    Just FYI, here's where to find the list of events for the Trans-NIH ME/CFS Working Group https://www.nih.gov/mecfs/events It lists...

    Feb 23, 2020 at 1:56 AM
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