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Recent Activity

Activity stream for all registered members at Science for ME.

  1. Joan Crawford liked Trish's post in the thread ME Association Statement on Exercise in ME/CFS and Long Covid, April 2021.

    Crossposted with @Sarah. I agree with the points made. ________ I agree that the emphasis on only being against inflexible programs is...

    Apr 23, 2021 at 5:42 AM
  2. Snow Leopard liked rvallee's post in the thread Trisha Greenhalgh on ME/CFS and Long Covid.

    Word has literally come out, including from the recent NIHR report and the numerous programs who attempted this, that exercise...

    Apr 23, 2021 at 5:33 AM
  3. Jaybee00 replied to the thread What’s in the pipeline? Ongoing, registered, or planned clinical trials for ME/CFS.

    https://www.healthrising.org/blog/2021/04/22/chronic-fatigue-brain-stimulation-clinical-trial/ Novel Chronic Fatigue Syndrome (ME/CFS)...

    Apr 23, 2021 at 5:26 AM
  4. Snow Leopard replied to the thread Trisha Greenhalgh on ME/CFS and Long Covid.

    This sounds like a terrible idea. There are plenty of (what should be) innocuous topics by which to attract threats (that aren't...

    Apr 23, 2021 at 5:22 AM
  5. Wilhelmina Jenkins liked Dolphin's post in the thread USA: NIH National Institute of Health.

    Personally, my impression is that Francis Collins has shown more interest in ME/CFS than his predecessors and is likely to be better for...

    Apr 23, 2021 at 5:21 AM
  6. Snow Leopard liked TiredSam's post in the thread Trisha Greenhalgh on ME/CFS and Long Covid.

    I don't know why people boast about getting death threats on twitter, it's hardly an achievement, anyone can do it. I reckon if I...

    Apr 23, 2021 at 5:18 AM
  7. Snow Leopard liked Esther12's post in the thread Trisha Greenhalgh on ME/CFS and Long Covid.

    You're posting your opinions here. Is twitter that different? I don't really understand the different ways different people use...

    Apr 23, 2021 at 5:18 AM
  8. Snow Leopard liked Esther12's post in the thread Trisha Greenhalgh on ME/CFS and Long Covid.

    There was that example of Greenhalgh describing an ME patient politely describing his concerns about a presentation she gave as...

    Apr 23, 2021 at 5:18 AM
  9. Snow Leopard liked EzzieD's post in the thread Public Functional Neurological Disorder: ‘The most common condition you’ve never heard of’ - BBC article.

    I truly fail to understand what the point of the Spectator article is, or why anyone would publish it. What is it supposed to...

    Apr 23, 2021 at 5:15 AM
  10. Wilhelmina Jenkins liked Andy's post in the thread Body Politic: Open Letter to the NIH (re: NIH’s funding for research into Long COVID).

    "We write to you on behalf of Body Politic – a grassroots health justice organization at the forefront of the patient-led movement for...

    Apr 23, 2021 at 5:15 AM
  11. Wilhelmina Jenkins liked Roy S's post in the thread USA: PBS NewsHour segment April 2021 features disability advocate Rivka Solomon discussing ME/cfs and long COVID.

    Read the Full Transcript Judy Woodruff: As we all hope and end to the pandemic is in sight, this past year leaves a spotlight on a...

    Apr 23, 2021 at 5:14 AM
  12. Wilhelmina Jenkins liked Yessica's post in the thread USA: PBS NewsHour segment April 2021 features disability advocate Rivka Solomon discussing ME/cfs and long COVID.

    Ohhh this is good! I'd like to send this link to some people. Curious if anyone outside of the U.S. or outside of an area with a...

    Apr 23, 2021 at 5:13 AM
  13. Wilhelmina Jenkins liked Kalliope's post in the thread USA: PBS NewsHour segment April 2021 features disability advocate Rivka Solomon discussing ME/cfs and long COVID.

    This was an impressive amount of information given in four minutes [MEDIA]

    Apr 23, 2021 at 5:13 AM
  14. Snow Leopard liked Kalliope's post in the thread General thread on functional disorders in Denmark.

    Article from Nina E. Steinkopf about collaboration between psychiatry and the insurance industry - and how a Danish insurance company...

    Apr 23, 2021 at 5:13 AM
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