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Recent Activity

Activity stream for all registered members at Science for ME.

  1. Sean liked Barry's post in the thread Doctors with ME: Putting it into Practice: What NICE ME/CFS means for GPs.

    So maybe the new NICE guideline has brought us further forward than I realised, in its updating and clarifying of the diagnostic...

    Jan 19, 2022 at 10:36 PM
  2. Sean liked Adrian's post in the thread Doctors with ME: Putting it into Practice: What NICE ME/CFS means for GPs.

    I think the IoM report may have used similar language in that they were saying a diagnosis is due to the characteristics in the...

    Jan 19, 2022 at 10:36 PM
  3. tuha replied to the thread The microclots in ME/CFS study has begun.

    I dont know if another team will try to replicate this study in ME/CFS patients but there was a japaness team which I think replicated...

    Jan 19, 2022 at 10:35 PM
  4. Sean liked Simon M's post in the thread (Preprint) Excess risk and clusters of symptoms after COVID-19 in a large Norwegian cohort by Caspersen et al..

    Comments For me, the most striking thing about this well-done study is that it finds two biologically coherent groups of symptoms among...

    Jan 19, 2022 at 10:33 PM
  5. Sean liked JemPD's post in the thread United Kingdom: News from BACME - British Association for CFS/ME.

    its this bit that troubles me most because who's version of what happened are they going to use... I know there is a factual timeline,...

    Jan 19, 2022 at 10:32 PM
  6. Sean liked Dakota15's post in the thread Possibility of ME or PVFS after COVID-19, Long Covid.

    Dr. Peter Rowe, x2 "Dr. M’s Women and Children First Podcast #13 – Dr. Peter Rowe, Chronic Fatigue Syndrome and Long Covid" Quick...

    Jan 19, 2022 at 10:30 PM
  7. Sean liked Mithriel's post in the thread Possibility of ME or PVFS after COVID-19, Long Covid.

    This raises lots of red flags for me. Wessely makes a big thing of people with ME misinterpreting normal bodily reactions as ill health...

    Jan 19, 2022 at 10:29 PM
  8. Sean liked Dakota15's post in the thread Possibility of ME or PVFS after COVID-19, Long Covid.

    "Observations on long COVID through an ME/CFS lens" with Dr. Peter Rowe, hosted by FNIH (Foundation for the NIH) Presented 1/14/22 "I...

    Jan 19, 2022 at 10:29 PM
  9. Sean liked CRG's post in the thread Possibility of ME or PVFS after COVID-19, Long Covid.

    Study: Rapid vigilance and episodic memory decrements in COVID-19 survivors...

    Jan 19, 2022 at 10:29 PM
  10. Sean liked dave30th's post in the thread Functional Neurological Disorders - discussion thread.

    I guess I don't understand this point. I didn't see VanE reference MS as an analogy for ME. I don't think his tweets mentioned ME. I...

    Jan 19, 2022 at 10:28 PM
  11. Sean liked Jonathan Edwards's post in the thread Functional Neurological Disorders - discussion thread.

    The meaning seems to me quite clear - that MS was commonly called a hysterical conversion disorder. Surely that means that people think...

    Jan 19, 2022 at 10:28 PM
  12. alktipping liked Amw66's post in the thread Functional Neurological Disorders - discussion thread.

    That's how I read it too

    Jan 19, 2022 at 10:26 PM
  13. alktipping liked Kitty's post in the thread Doctors with ME: Putting it into Practice: What NICE ME/CFS means for GPs.

    Yes, I agree (though doctors might use 'unambiguous' reluctantly!), but I'm not sure the second part of the sentence even needs saying....

    Jan 19, 2022 at 10:26 PM
  14. Amw66 replied to the thread Functional Neurological Disorders - discussion thread.

    That's how I read it too

    Jan 19, 2022 at 10:24 PM
  15. alktipping liked Medfeb's post in the thread Doctors with ME: Putting it into Practice: What NICE ME/CFS means for GPs.

    As @Adrian noted, the IOM used similar language - ME is a positive diagnosis, not an exclusionary one in the sense that it relies on...

    Jan 19, 2022 at 10:24 PM
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