Recent Activity
Activity stream for all registered members at Science for ME.
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RedFox liked Snow Leopard's post in the thread Assessing Functional Capacity in [ME/CFS]: A Patient Informed Questionnaire [FUNCAP], 2024, Sommerfelt et al.
I'm glad there is a shorter version. Is there a version of https://raffbenato.github.io/funcap55/ for the FUNCAP27?
Jun 18, 2024 at 12:04 PM -
RedFox liked trudeschei's post in the thread Assessing Functional Capacity in [ME/CFS]: A Patient Informed Questionnaire [FUNCAP], 2024, Sommerfelt et al.
The whole process started because Norwegian welfare authorities (Nav) asked a national fatigue network to recommend a form that could be...
Jun 18, 2024 at 12:04 PM -
RedFox liked Ravn's post in the thread Assessing Functional Capacity in [ME/CFS]: A Patient Informed Questionnaire [FUNCAP], 2024, Sommerfelt et al.
Very pleased to see this finally published. I hope lots of researchers use it. Sure, there are a few things I would have cut and sliced...
Jun 18, 2024 at 12:04 PM -
RedFox liked Hutan's post in the thread Assessing Functional Capacity in [ME/CFS]: A Patient Informed Questionnaire [FUNCAP], 2024, Sommerfelt et al.
I'm noting the different responses from forum members to this questionnaire, which is a PROM, and the MEA-funded work of Sarah Tyson's...
Jun 18, 2024 at 12:04 PM -
RedFox liked Andy's post in the thread Assessing Functional Capacity in [ME/CFS]: A Patient Informed Questionnaire [FUNCAP], 2024, Sommerfelt et al.
Now published, Assessing Functional Capacity in Myalgic Encephalopathy/Chronic Fatigue Syndrome: A Patient-Informed Questionnaire, open...
Jun 18, 2024 at 12:03 PM -
Eleanor liked bobbler's post in the thread Open Medicine Foundation (OMF).
I think your second to last line is important. Over decades there have been very few spaces in time where I have had any control over...
Jun 18, 2024 at 11:58 AM -
Eleanor liked bobbler's post in the thread Open Medicine Foundation (OMF).
Anyway, I mention this not to whinge but because there is a lot that I am bartering in pros and cons when you think about how we start...
Jun 18, 2024 at 11:58 AM -
bobbler replied to the thread Open Medicine Foundation (OMF).
Anyway, I mention this not to whinge but because there is a lot that I am bartering in pros and cons when you think about how we start...
Jun 18, 2024 at 11:54 AM -
Tapanui 'Flu liked Hutan's post in the thread 2024: Twitter campaign aimed at John Oliver and Jon Stewart.
Fabulous, @Tapanui 'Flu
Jun 18, 2024 at 11:54 AM -
NelliePledge liked MelbME's post in the thread Open Medicine Foundation (OMF).
Very true. I meant it in a positive way. I'm typing pretty quickly on here. I can't even think of the right word, it seems like...
Jun 18, 2024 at 11:53 AM -
MrMagoo liked bobbler's post in the thread Open Medicine Foundation (OMF).
I think your second to last line is important. Over decades there have been very few spaces in time where I have had any control over...
Jun 18, 2024 at 11:53 AM -
SNT Gatchaman liked Jonathan Edwards's post in the thread Open Medicine Foundation (OMF).
The key thing, Chris @MelbME, is to remember not to try to teach this load of grannies to suck eggs. Or at least, by all means try - I...
Jun 18, 2024 at 11:51 AM -
SNT Gatchaman liked MelbME's post in the thread Open Medicine Foundation (OMF).
Very true. I meant it in a positive way. I'm typing pretty quickly on here. I can't even think of the right word, it seems like...
Jun 18, 2024 at 11:50 AM -
SNT Gatchaman liked Andy's post in the thread The hidden crisis: Long COVID's association with housing stability and home accessibility among people with disabilities 2024 Goddard et al.
Abstract Background The COVID-19 pandemic has given rise to the emerging phenomenon known as Long COVID, characterized by persistent...
Jun 18, 2024 at 11:49 AM