Recent Activity

Activity stream for all registered members at Science for ME.

  1. forestglip liked Peter Trewhitt's post in the thread Protocol Effects of Pycnogenol® in people with post-COVID-19 condition (PYCNOVID): study protocol for a single-center, placebo controlled, quadruple-blind, RCT.

    Anecdotally we quite often hear about interventions that seems to work at first but then very quickly no longer works. Does this happen...

    Jun 18, 2024 at 1:53 PM
  2. forestglip liked Hutan's post in the thread Open Medicine Foundation (OMF).

    :) In the spirit of robust debate, I'd suggest a better word than 'disagreeable' might be 'rigorous'.

    Jun 18, 2024 at 1:52 PM
  3. forestglip liked Hutan's post in the thread Open Medicine Foundation (OMF).

    Thanks @horton6. The tag is "study idea". Tags are found on the top left of a thread. You can click on the link in this paragraph and...

    Jun 18, 2024 at 1:52 PM
  4. Wyva liked Binkie4's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.

    Part 3 is taking me longer to read than I expected. I think this may be because it is based on a much deeper knowledge of the background...

    Jun 18, 2024 at 1:51 PM
  5. Midnattsol liked Andy's post in the thread The hidden crisis: Long COVID's association with housing stability and home accessibility among people with disabilities 2024 Goddard et al.

    Abstract Background The COVID-19 pandemic has given rise to the emerging phenomenon known as Long COVID, characterized by persistent...

    Jun 18, 2024 at 1:50 PM
  6. Dakota15 replied to the thread News from the USA, United States of America.

    STAT News: 'Long Covid feels like a gun to my head' 'I have spent my career studying infectious diseases that fall under the heading of...

    Jun 18, 2024 at 1:47 PM
  7. alex3619 replied to the thread Protocol Effects of Pycnogenol® in people with post-COVID-19 condition (PYCNOVID): study protocol for a single-center, placebo controlled, quadruple-blind, RCT.

    It definitely can be with minor results. Was it working, was it not? Expectation can lead us to think it was working when it was not....

    Jun 18, 2024 at 1:40 PM
  8. LJord liked bobbler's post in the thread The Canary: The two leading UK ME/CFS charities are linked to an organisation fomenting the psychologisation of the illness, 2024, Hannah Sharland.

    It's not something that many of us want to bring up for a multitude of reasons but it is important, particularly if the advice is coming...

    Jun 18, 2024 at 1:38 PM
  9. LJord liked Binkie4's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.

    Part 3 is taking me longer to read than I expected. I think this may be because it is based on a much deeper knowledge of the background...

    Jun 18, 2024 at 1:36 PM
  10. alex3619 liked Peter Trewhitt's post in the thread Protocol Effects of Pycnogenol® in people with post-COVID-19 condition (PYCNOVID): study protocol for a single-center, placebo controlled, quadruple-blind, RCT.

    Anecdotally we quite often hear about interventions that seems to work at first but then very quickly no longer works. Does this happen...

    Jun 18, 2024 at 1:21 PM
  11. lycaena liked Hutan's post in the thread Psychocorporal approach to functional somatic disorders 2024 Kachaner, Lemogne and Ranque.

    They are like a broken record. How is this science? It seems more like propaganda.

    Jun 18, 2024 at 1:12 PM
  12. lycaena liked Obermann's post in the thread Review Persistent physical symptoms: definition, genesis, and management 2024 Löwe, Rosmalen, Burton et al.

    I always find formulations like this very suspicious. How do you provide a biospsychosocial explanation—or any other explanation, for...

    Jun 18, 2024 at 1:01 PM
  13. bobbler replied to the thread The Canary: The two leading UK ME/CFS charities are linked to an organisation fomenting the psychologisation of the illness, 2024, Hannah Sharland.

    It's not something that many of us want to bring up for a multitude of reasons but it is important, particularly if the advice is coming...

    Jun 18, 2024 at 12:52 PM
  14. Sean liked Andy's post in the thread The hidden crisis: Long COVID's association with housing stability and home accessibility among people with disabilities 2024 Goddard et al.

    Abstract Background The COVID-19 pandemic has given rise to the emerging phenomenon known as Long COVID, characterized by persistent...

    Jun 18, 2024 at 12:51 PM
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