Recent Activity
Activity stream for all registered members at Science for ME.
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SNT Gatchaman liked Joan Crawford's post in the thread Effectiveness of a symptom-clinic intervention ... multiple and persistent physical symptoms, 2024, Burton, Deary et al.
"Although we excluded people with organic disease in the design of this trial....." Now there's a claim. Boom. (Apologies it's a...
Jun 15, 2024 at 2:12 AM -
SNT Gatchaman liked Joan Crawford's post in the thread Effectiveness of a symptom-clinic intervention ... multiple and persistent physical symptoms, 2024, Burton, Deary et al.
Gobsmacking overconfidence. They do not demonstrate in any objective manner that they made a real world difference to anyone. Even...
Jun 15, 2024 at 2:12 AM -
SNT Gatchaman liked ME/CFS Skeptic's post in the thread Effectiveness of a symptom-clinic intervention ... multiple and persistent physical symptoms, 2024, Burton, Deary et al.
Looks like a highly problematic study. It has the design A +B versus A. The control group got no intervention at all, only the usual...
Jun 15, 2024 at 2:12 AM -
SNT Gatchaman liked Joan Crawford's post in the thread Effectiveness of a symptom-clinic intervention ... multiple and persistent physical symptoms, 2024, Burton, Deary et al.
"At baseline, PHQ-15 scores were 14·9 (SD 3·0) in the group receiving usual care and 15·0 (2·9) in the group receiving the intervention...
Jun 15, 2024 at 2:10 AM -
Hutan replied to the thread Effectiveness of a symptom-clinic intervention ... multiple and persistent physical symptoms, 2024, Burton, Deary et al.
Diagnosis See the post upthread for the list of questions in the PHQ-15. I note that women have to answer an additional question about...
Jun 15, 2024 at 1:59 AM -
Wits_End liked Kitty's post in the thread Powered wheelchair that tilts for indoors and garden path UK.
Forgot to mention this. It's not the rolling—it's things like whether you can get your head at just the right angle to be comfortable,...
Jun 15, 2024 at 1:46 AM -
SNT Gatchaman liked Hutan's post in the thread Measuring cerebral hypoperfusion with Doppler ultrasound.
I'm pretty sure though that the orthostatic intolerance in my children and I started at the same time as all the other symptoms. And so...
Jun 15, 2024 at 1:35 AM -
SNT Gatchaman liked rvallee's post in the thread Webinar: USA: National Academy of Medicine: New Definition Proposed for Long COVID, June 11, 2024, 1 PM EDT.
It's a recognition that COVID can cause a huge number of health issues, some of which are syndromes or even single symptoms. Which...
Jun 15, 2024 at 1:34 AM -
Hutan replied to the thread Effectiveness of a symptom-clinic intervention ... multiple and persistent physical symptoms, 2024, Burton, Deary et al.
Introduction What nonsense - that a third of referrals from GPs to specialists is due to functional disorders and physical symptoms...
Jun 15, 2024 at 1:32 AM -
Wits_End liked Sean's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
Doctors have to say we don't know, we got nothing. Equally patients have to hear and accept it. And not just patients, but also their...
Jun 15, 2024 at 1:28 AM -
Wits_End liked Kitty's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
True, but pwME also have to be prepared for them to say, "All we can recommend is pacing." Some recently diagnosed pwME will find it...
Jun 15, 2024 at 1:28 AM -
Wits_End liked Jonathan Edwards's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
It may be difficult because, as Trish says, there is so much muddled thinking everywhere. But the first thing I would say is that 'the...
Jun 15, 2024 at 1:27 AM -
Wits_End liked Nightsong's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
The times that I've used the services of private specialists, it hasn't been about managing the core features of ME. I've needed help...
Jun 15, 2024 at 1:26 AM -
SNT Gatchaman liked Hutan's post in the thread Assessing Functional Capacity in [ME/CFS]: A Patient Informed Questionnaire [FUNCAP], 2024, Sommerfelt et al.
I'm noting the different responses from forum members to this questionnaire, which is a PROM, and the MEA-funded work of Sarah Tyson's...
Jun 15, 2024 at 1:26 AM -
SNT Gatchaman liked Andy's post in the thread Assessing Functional Capacity in [ME/CFS]: A Patient Informed Questionnaire [FUNCAP], 2024, Sommerfelt et al.
Now published, Assessing Functional Capacity in Myalgic Encephalopathy/Chronic Fatigue Syndrome: A Patient-Informed Questionnaire, open...
Jun 15, 2024 at 1:25 AM
