Recent Activity
Activity stream for all registered members at Science for ME.
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Amw66 replied to the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Exactly this. Chris Ponting' has often said that the input of pwME in Decode ME from the start proved key to how questions were framed...
Jun 3, 2024 at 2:36 PM -
Amw66 liked NelliePledge's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Yes what PPI was there at the initial stage of scoping out the project, the assumption appears to have been for a bunch of...
Jun 3, 2024 at 2:34 PM -
Yann04 liked Kitty's post in the thread UK: Women forced to attend up to 10 GP appointments to get menopause diagnosis, study finds.
I agree, but they can sometimes be useful in this context. I'm of an age where nearly all the women I know have now gone through...
Jun 3, 2024 at 2:31 PM -
MeSci liked Andy's post in the thread European ME Coalition ME/CFS Pledge for the 2024 European elections.
"The ME/CFS pledge for the European elections We, at the European ME Coalition (EMEC) call upon candidates in the European elections to...
Jun 3, 2024 at 2:29 PM -
MeSci liked JohnTheJack's post in the thread Walk for ME 2024.
Good stuff, thanks, Ian. Sorry to hear your mother isn't well. Hope she improves soon.
Jun 3, 2024 at 2:26 PM -
MeSci liked IanMcPhee's post in the thread Walk for ME 2024.
I'm a little late, but Walk for ME is running again this year, and so far the team target is an amazing £10,000! If you would like to...
Jun 3, 2024 at 2:26 PM -
MeSci liked Jonathan Edwards's post in the thread A question about mitochondria.
Not a bit of it. That is exactly what we have been discussing on threads here for years!!
Jun 3, 2024 at 2:24 PM -
MeSci liked John Mac's post in the thread Trial Report Whole blood transcriptome in long-COVID patients reveals association with lung function and immune response, Blankestijn et al, 2024.
Abstract Background Months after infection with SARS-CoV-2, at least 10% of patients still experience complaints. Long-COVID is a...
Jun 3, 2024 at 2:23 PM -
Yann04 liked Mij's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
I hope you didn't interpret my description of PEM as minor. I was just describing how malaise is used in a medical setting Of...
Jun 3, 2024 at 2:22 PM -
Yann04 liked Kitty's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
When it was used to describe my illness, I think it really was in that sense. I first heard it in the mid-70s, when I'd seen the GP...
Jun 3, 2024 at 2:22 PM -
RedFox liked Yann04's post in the thread Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al.
Yes, the fact they are planning a follow up on PEM I am thankful for.
Jun 3, 2024 at 2:19 PM -
RedFox liked RaviHVJ's post in the thread Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al.
The thing that caught my eye was him saying that 8 other studies have resulted from the intramural one, which is new information to me...
Jun 3, 2024 at 2:19 PM
