Recent Activity
Activity stream for all registered members at Science for ME.
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Yann04 liked Mij's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
I hope you didn't interpret my description of PEM as minor. I was just describing how malaise is used in a medical setting Of...
Jun 3, 2024 at 2:22 PM -
Yann04 liked Kitty's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
When it was used to describe my illness, I think it really was in that sense. I first heard it in the mid-70s, when I'd seen the GP...
Jun 3, 2024 at 2:22 PM -
RedFox liked Yann04's post in the thread Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al.
Yes, the fact they are planning a follow up on PEM I am thankful for.
Jun 3, 2024 at 2:19 PM -
RedFox liked RaviHVJ's post in the thread Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al.
The thing that caught my eye was him saying that 8 other studies have resulted from the intramural one, which is new information to me...
Jun 3, 2024 at 2:19 PM -
RedFox liked Yann04's post in the thread Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al.
From the article: This is the second time that Nath has alluded to the demoralizing effect that attacks can have on researchers. (The...
Jun 3, 2024 at 2:19 PM -
RedFox liked Yann04's post in the thread Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al.
Health Rising (Cort Johnson) just released a piece on the study and it’s findings. While I think parts of it were well written, I was...
Jun 3, 2024 at 2:19 PM -
MeSci liked Adrian's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
If I were working in this area the first thing I would do is set out what the PROM is trying to achieve and hence define the properties...
Jun 3, 2024 at 2:17 PM -
RedFox liked Trish's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
Fatigue is what I felt when well after a long hike, dancing all night or being up several times a night feeding a baby or caring for a...
Jun 3, 2024 at 2:17 PM -
RedFox liked butter.'s post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
They all had an insufficient workup during the acute and sub-acute stage of their disease/trigger event, making it close to impossible...
Jun 3, 2024 at 2:17 PM