Recent Activity
Activity stream for all registered members at Science for ME.
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Peter Trewhitt liked ME/CFS Skeptic's post in the thread USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls).
In the Netherlands they are planning to do a platform trials study for Long Covid. This is mentioned in the study led by Prof. dr. Anske...
Jun 3, 2024 at 2:41 PM -
rvallee liked alktipping's post in the thread UK: Women forced to attend up to 10 GP appointments to get menopause diagnosis, study finds.
they really like to tag on anxiety and depression to everything don't they . those two words seem to be very dismissive of two very...
Jun 3, 2024 at 2:41 PM -
Peter Trewhitt liked Mij's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
I have never mentioned PEM or OI to any doctor/specialist in 33yrs of have M.E. I can't stand or walk very far is what I tell them....
Jun 3, 2024 at 2:40 PM -
Peter Trewhitt liked Mij's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
I hope you didn't interpret my description of PEM as minor. I was just describing how malaise is used in a medical setting Of...
Jun 3, 2024 at 2:40 PM -
Peter Trewhitt liked Mij's post in the thread UK: Women forced to attend up to 10 GP appointments to get menopause diagnosis, study finds.
I know it's bad in the U.K and found it very interesting that my sister who works at a Saudi hospital had a telemedicine consult with a...
Jun 3, 2024 at 2:40 PM -
Peter Trewhitt liked Mij's post in the thread UK: Women forced to attend up to 10 GP appointments to get menopause diagnosis, study finds.
To be fair, anxiety and depression symptoms do occur during menopause and it can be very distressing. There were months during the...
Jun 3, 2024 at 2:40 PM -
Peter Trewhitt liked forestglip's post in the thread Modern environmental factors.
It does. A bit hard to notice, but I linked the word "Thread" in my post. I'll add some space so it's more visible.
Jun 3, 2024 at 2:39 PM -
Peter Trewhitt liked Joan Crawford's post in the thread Modern environmental factors.
Should this paper not have its own thread?
Jun 3, 2024 at 2:39 PM -
ME/CFS Skeptic replied to the thread USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls).
In the Netherlands they are planning to do a platform trials study for Long Covid. This is mentioned in the study led by Prof. dr. Anske...
Jun 3, 2024 at 2:38 PM -
JellyBabyKid liked Amw66's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Exactly this. Chris Ponting' has often said that the input of pwME in Decode ME from the start proved key to how questions were framed...
Jun 3, 2024 at 2:37 PM -
Amw66 replied to the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Exactly this. Chris Ponting' has often said that the input of pwME in Decode ME from the start proved key to how questions were framed...
Jun 3, 2024 at 2:36 PM -
Amw66 liked NelliePledge's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Yes what PPI was there at the initial stage of scoping out the project, the assumption appears to have been for a bunch of...
Jun 3, 2024 at 2:34 PM -
Yann04 liked Kitty's post in the thread UK: Women forced to attend up to 10 GP appointments to get menopause diagnosis, study finds.
I agree, but they can sometimes be useful in this context. I'm of an age where nearly all the women I know have now gone through...
Jun 3, 2024 at 2:31 PM -
MeSci liked Andy's post in the thread European ME Coalition ME/CFS Pledge for the 2024 European elections.
"The ME/CFS pledge for the European elections We, at the European ME Coalition (EMEC) call upon candidates in the European elections to...
Jun 3, 2024 at 2:29 PM
