Recent Activity

Activity stream for all registered members at Science for ME.

  1. NelliePledge replied to the thread Lancet - Medically unexplained symptoms explained.

    As well as FND all psychosomatic efforts are post NICE 21 obviously going into promotion of MUS to reclaim the ground lost.

    Jun 14, 2024 at 6:18 PM
  2. NelliePledge replied to the thread : TV casting call for people living with ME/CFS.

    Well Netflix have history so I wouldn’t be surprised it it was them

    Jun 14, 2024 at 6:15 PM
  3. NelliePledge liked Joan Crawford's post in the thread : TV casting call for people living with ME/CFS.

    I have forwarded my two polite, informative emails that I sent to producer Janet Chute on Tuesday and Thursday to the Head of Television...

    Jun 14, 2024 at 6:14 PM
  4. wingate liked rvallee's post in the thread USA: The RECOVER Initiative - Long Covid research.

    [IMG] The skepticism is unfortunately not only well-deserved, but far lower than it deserves to be. The dumpster fire that was the...

    Jun 14, 2024 at 6:13 PM
  5. wingate liked Kalliope's post in the thread USA: The RECOVER Initiative - Long Covid research.

    Trial by Error by David Tuller Betsy Ladyshetz on Problems with NIH's RECOVER Initiative Presentation: Science journalist Betsy...

    Jun 14, 2024 at 6:13 PM
  6. NelliePledge liked PhysiosforME's post in the thread : TV casting call for people living with ME/CFS.

    We have emailed the TV company: Dear Janet, we are a research, education and advocacy group aiming to improve physiotherapy...

    Jun 14, 2024 at 6:12 PM
  7. Yann04 liked rvallee's post in the thread USA: The RECOVER Initiative - Long Covid research.

    A few more slides I noticed that seem relevant: [IMG] [IMG]

    Jun 14, 2024 at 6:11 PM
  8. Yann04 liked Joan Crawford's post in the thread Lancet - Medically unexplained symptoms explained.

    "GPs with an extended role spent substantial time actively listening to the participant describe their illness and proposing and...

    Jun 14, 2024 at 6:11 PM
  9. Yann04 liked Joan Crawford's post in the thread Lancet - Medically unexplained symptoms explained.

    "Although we excluded people with organic disease in the design of this trial....." Now there's a claim. Boom. (Apologies it's a...

    Jun 14, 2024 at 6:11 PM
  10. NelliePledge liked Robert 1973's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.

    From memory there is some comment from Wessely on the Ean Proctor on his website in response to criticism. Suggest anyone writing about...

    Jun 14, 2024 at 6:10 PM
  11. NelliePledge liked Trish's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.

    In situations like this, I think far better to provide links to people with expertise rather than risking getting facts wrong.

    Jun 14, 2024 at 6:09 PM
  12. NelliePledge liked Trish's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.

    There have been some newspaper articles about bad treatment in hospitals. Also suggest they contact Dr Charles Shepherd and Dr Nigel...

    Jun 14, 2024 at 6:09 PM
  13. Joan Crawford replied to the thread Lancet - Medically unexplained symptoms explained.

    "GPs with an extended role spent substantial time actively listening to the participant describe their illness and proposing and...

    Jun 14, 2024 at 6:09 PM
  14. Jonathan Edwards replied to the thread Measuring cerebral hypoperfusion with Doppler ultrasound.

    I am wondering whether reduced cerebral perfusion on standing with a normal blood pressure in ME/CFS reflects a greater vasoconstrictive...

    Jun 14, 2024 at 6:08 PM
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