Recent Activity
Activity stream for all registered members at Science for ME.
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lycaena liked Hutan's post in the thread Psychocorporal approach to functional somatic disorders 2024 Kachaner, Lemogne and Ranque.
They are like a broken record. How is this science? It seems more like propaganda.
Jun 18, 2024 at 1:12 PM -
lycaena liked Obermann's post in the thread Review Persistent physical symptoms: definition, genesis, and management 2024 Löwe, Rosmalen, Burton et al.
I always find formulations like this very suspicious. How do you provide a biospsychosocial explanation—or any other explanation, for...
Jun 18, 2024 at 1:01 PM -
bobbler replied to the thread The Canary: The two leading UK ME/CFS charities are linked to an organisation fomenting the psychologisation of the illness, 2024, Hannah Sharland.
It's not something that many of us want to bring up for a multitude of reasons but it is important, particularly if the advice is coming...
Jun 18, 2024 at 12:52 PM -
Sean liked Andy's post in the thread The hidden crisis: Long COVID's association with housing stability and home accessibility among people with disabilities 2024 Goddard et al.
Abstract Background The COVID-19 pandemic has given rise to the emerging phenomenon known as Long COVID, characterized by persistent...
Jun 18, 2024 at 12:51 PM -
Sean liked FMMM1's post in the thread Norwegian guidelines in development: help with a literature search.
@Lena Kjempengren you could highlight the rituximab trial methodology (all clinical trials are registered). Specifically highlight that...
Jun 18, 2024 at 12:50 PM -
Sean liked Jonathan Edwards's post in the thread Open Medicine Foundation (OMF).
The key thing, Chris @MelbME, is to remember not to try to teach this load of grannies to suck eggs. Or at least, by all means try - I...
Jun 18, 2024 at 12:50 PM -
Yann04 replied to the thread Protocol Effects of Pycnogenol® in people with post-COVID-19 condition (PYCNOVID): study protocol for a single-center, placebo controlled, quadruple-blind, RCT.
Is this not a common manifestation of the placebo effect?
Jun 18, 2024 at 12:50 PM -
Sean liked MelbME's post in the thread Open Medicine Foundation (OMF).
Very true. I meant it in a positive way. I'm typing pretty quickly on here. I can't even think of the right word, it seems like...
Jun 18, 2024 at 12:50 PM -
Yann04 liked Peter Trewhitt's post in the thread Protocol Effects of Pycnogenol® in people with post-COVID-19 condition (PYCNOVID): study protocol for a single-center, placebo controlled, quadruple-blind, RCT.
Anecdotally we quite often hear about interventions that seems to work at first but then very quickly no longer works. Does this happen...
Jun 18, 2024 at 12:49 PM -
Yann04 liked Jonathan Edwards's post in the thread Protocol Effects of Pycnogenol® in people with post-COVID-19 condition (PYCNOVID): study protocol for a single-center, placebo controlled, quadruple-blind, RCT.
Presumably "Retsina" is out of patent after 2500 years.
Jun 18, 2024 at 12:49 PM -
Sean liked Hutan's post in the thread Review Persistent physical symptoms: definition, genesis, and management 2024 Löwe, Rosmalen, Burton et al.
Well, sure, if you really need an umbrella term for the pain and functional restriction of arthritis, the loss of physical capacity of...
Jun 18, 2024 at 12:49 PM -
Yann04 liked alex3619's post in the thread Protocol Effects of Pycnogenol® in people with post-COVID-19 condition (PYCNOVID): study protocol for a single-center, placebo controlled, quadruple-blind, RCT.
I tried pycnogenol. At low dose it does nothing. At high dose ... wham, amazing, but only happened once. It was not repeatable.
Jun 18, 2024 at 12:48 PM -
Yann04 liked TiredSam's post in the thread European ME Coalition ME/CFS Pledge for the 2024 European elections.
I voted on the basis of this.
Jun 18, 2024 at 12:48 PM
