Recent Activity
Activity stream for all registered members at Science for ME.
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Peter Trewhitt liked Yann04's post in the thread United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland).
Residents to get help with long Covid symptoms - BBC People who are struggling with symptoms of long Covid can get help from a...
Jun 3, 2024 at 5:40 PM -
Peter Trewhitt liked NelliePledge's post in the thread United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland).
I always find such articles stressful and worrying for the person engaging in the strenuous activity People are entitled to do what...
Jun 3, 2024 at 5:40 PM -
Peter Trewhitt liked Yann04's post in the thread United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland).
Oh god: Hemel Long Covid Sufferer attempts World Record A Hemel man is attempting to break a world indoor rowing record despite having...
Jun 3, 2024 at 5:40 PM -
Peter Trewhitt liked Yann04's post in the thread United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland).
Long Covid Teachers Join Forces to Sue Ministers - Schoolsweek https://schoolsweek.co.uk/long-covid-teachers-join-forces-to-sue-ministers/
Jun 3, 2024 at 5:40 PM -
Peter Trewhitt liked Yann04's post in the thread United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland).
It’s like how they celebrate and glorify the winner of the hunger games, while ignoring and not doing any funeral or anything for the 23...
Jun 3, 2024 at 5:39 PM -
Peter Trewhitt liked JemPD's post in the thread United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland).
yes its not a very long way from there to the celebration of contestatns in The Hunger Games is it :(
Jun 3, 2024 at 5:39 PM -
Peter Trewhitt liked rvallee's post in the thread United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland).
People being bedbound for 2.5 years being spun up as feel-good stories, neglecting the huge number of people who do not have a happy...
Jun 3, 2024 at 5:39 PM -
Peter Trewhitt liked Trish's post in the thread EU: News from the European ME Coalition (EMEC).
Thread here: https://www.s4me.info/threads/european-me-coalition-me-cfs-pledge-for-the-2024-european-elections.38784/
Jun 3, 2024 at 5:39 PM -
Peter Trewhitt liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
It is. They decided what they wanted to do, then asked some pwME for feedback. They also engaged here and chose to disregard all...
Jun 3, 2024 at 5:38 PM -
Peter Trewhitt liked Amw66's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Exactly this. Chris Ponting' has often said that the input of pwME in Decode ME from the start proved key to how questions were framed...
Jun 3, 2024 at 5:38 PM -
Peter Trewhitt liked Trish's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Some posts have been moved to: Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024
Jun 3, 2024 at 5:38 PM -
Peter Trewhitt liked NelliePledge's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Yes what PPI was there at the initial stage of scoping out the project, the assumption appears to have been for a bunch of...
Jun 3, 2024 at 5:38 PM -
Peter Trewhitt liked MrMagoo's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
Can’t wait to see the video when it’s released in a few days
Jun 3, 2024 at 5:38 PM -
Peter Trewhitt liked MrMagoo's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
It makes them look paranoid
Jun 3, 2024 at 5:38 PM -
Peter Trewhitt liked NelliePledge's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
Normal good practice chairing of any meeting especially larger groups where people are remote would be to explain when questions will be...
Jun 3, 2024 at 5:37 PM
