Recent Activity
Activity stream for all registered members at Science for ME.
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rvallee liked Andy's post in the thread European ME Coalition ME/CFS Pledge for the 2024 European elections.
"The ME/CFS pledge for the European elections We, at the European ME Coalition (EMEC) call upon candidates in the European elections to...
Jun 3, 2024 at 2:50 PM -
NelliePledge replied to the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
Normal good practice chairing of any meeting especially larger groups where people are remote would be to explain when questions will be...
Jun 3, 2024 at 2:49 PM -
Trish liked Mij's post in the thread UK: Women forced to attend up to 10 GP appointments to get menopause diagnosis, study finds.
I know it's bad in the U.K and found it very interesting that my sister who works at a Saudi hospital had a telemedicine consult with a...
Jun 3, 2024 at 2:46 PM -
Trish liked Mij's post in the thread UK: Women forced to attend up to 10 GP appointments to get menopause diagnosis, study finds.
To be fair, anxiety and depression symptoms do occur during menopause and it can be very distressing. There were months during the...
Jun 3, 2024 at 2:46 PM -
Trish liked Amw66's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Exactly this. Chris Ponting' has often said that the input of pwME in Decode ME from the start proved key to how questions were framed...
Jun 3, 2024 at 2:45 PM -
Dolphin liked Andy's post in the thread European ME Coalition ME/CFS Pledge for the 2024 European elections.
From Twitter, "The list of supporters keeps on growing. 32 candidates and/or MEPs have signed the ME/CFS pledge thus far."
Jun 3, 2024 at 2:44 PM -
Dolphin liked ME/CFS Skeptic's post in the thread USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls).
In the Netherlands they are planning to do a platform trials study for Long Covid. This is mentioned in the study led by Prof. dr. Anske...
Jun 3, 2024 at 2:44 PM -
rvallee liked Trish's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
Is this normal in webinars like this, or is it specially inserted because of mythology about abusive pwME? It seems to me to be pretty...
Jun 3, 2024 at 2:43 PM -
Peter Trewhitt liked Andy's post in the thread European ME Coalition ME/CFS Pledge for the 2024 European elections.
From Twitter, "The list of supporters keeps on growing. 32 candidates and/or MEPs have signed the ME/CFS pledge thus far."
Jun 3, 2024 at 2:43 PM -
rvallee liked NelliePledge's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
Woah that is ridiculous. Are they deliberately trying to upset people so that they get cross on the call. These people are so...
Jun 3, 2024 at 2:43 PM -
Peter Trewhitt liked Andy's post in the thread European ME Coalition ME/CFS Pledge for the 2024 European elections.
"The ME/CFS pledge for the European elections We, at the European ME Coalition (EMEC) call upon candidates in the European elections to...
Jun 3, 2024 at 2:43 PM -
Peter Trewhitt liked JohnTheJack's post in the thread Walk for ME 2024.
Good stuff, thanks, Ian. Sorry to hear your mother isn't well. Hope she improves soon.
Jun 3, 2024 at 2:43 PM -
Peter Trewhitt liked IanMcPhee's post in the thread Walk for ME 2024.
I'm a little late, but Walk for ME is running again this year, and so far the team target is an amazing £10,000! If you would like to...
Jun 3, 2024 at 2:43 PM -
Peter Trewhitt liked Hutan's post in the thread Transfer of human serum IgG to ... mice ... role for autoantibodies in the loss of secretory function.. in Sjögren’s syndrome 1998, Robinson et al.
I thought people might be interested in this 1998 paper, in the light of the recent studies claiming to transfer Long Covid symptoms to...
Jun 3, 2024 at 2:42 PM -
Peter Trewhitt liked Hutan's post in the thread Transfer of human serum IgG to ... mice ... role for autoantibodies in the loss of secretory function.. in Sjögren’s syndrome 1998, Robinson et al.
Transfer of human serum IgG to nonobese diabetic Igμnull mice reveals a role for autoantibodies in the loss of secretory function of...
Jun 3, 2024 at 2:42 PM
