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Activity stream for all registered members at Science for ME.
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forestglip liked DigitalDrifter's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
I'm very severe and can't type much but here's something I wrote back in 2018 about my experience: I was sectioned on 20th August 2014...
Jun 14, 2024 at 1:56 PM -
cfsandmore liked Snow Leopard's post in the thread EXCLUSIVE: Man, 32, becomes fully paralyzed within days of catching COVID due to rare syndrome.
He's lucky that he's able to work again... From the article: That is flat-out misinformation given the very high symptom and...
Jun 14, 2024 at 1:55 PM -
forestglip liked Lou B Lou's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
‘You don’t want to get better’: the outdated treatment of ME/CFS patients is a national scandal 'From harmful ‘therapies’ to social...
Jun 14, 2024 at 1:55 PM -
forestglip liked JemPD's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
Also direct her to Sean O'Neill from The Times. featured here on channel 4 news, he'd have a major story to tell i reckon M.E.: Lives...
Jun 14, 2024 at 1:55 PM -
forestglip liked JemPD's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
you spoke about Ean Proctor.... not sure if you seen this video with Ean and his parents (it's later on in the clip) ME is still not...
Jun 14, 2024 at 1:55 PM -
forestglip liked JemPD's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
We need to be very careful that this isnt actually someone seeking to present the abuse as 'false abuse claims against drs/scientists'...
Jun 14, 2024 at 1:55 PM -
forestglip liked Aaron's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
No problem! I’ll send over the Monblot article and some of the other links and videos that have been contributed. Thanks!
Jun 14, 2024 at 1:55 PM -
forestglip liked Trish's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
You could also link them to this thread.
Jun 14, 2024 at 1:54 PM -
forestglip liked Trish's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
In situations like this, I think far better to provide links to people with expertise rather than risking getting facts wrong.
Jun 14, 2024 at 1:54 PM -
forestglip liked Lou B Lou's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
. https://me-pedia.org/wiki/Ean_Proctor Dr. Ann McIntire's Frontline Program about ME/CFS (Vintage VHS), 1990s? This documentary...
Jun 14, 2024 at 1:54 PM -
forestglip liked Trish's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
Opinion: ‘You don’t want to get better’: the outdated treatment of ME/CFS patients is a national scandal - George Monbiot
Jun 14, 2024 at 1:54 PM -
forestglip liked Yann04's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
George Monbiot article is the only mainstream article I know of that property called out Wesseley.
Jun 14, 2024 at 1:54 PM -
forestglip liked Aaron's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
Hey Trish, thanks for replying so quickly! Oh that’s great. Yeah I wasn’t sure whether to attempt to just write some sort of summary...
Jun 14, 2024 at 1:54 PM -
forestglip liked Trish's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
There have been some newspaper articles about bad treatment in hospitals. Also suggest they contact Dr Charles Shepherd and Dr Nigel...
Jun 14, 2024 at 1:54 PM -
forestglip liked Aaron's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
I’ve been Tweeting alot about Wessely and his involvement in the Ean Proctor case and last night a BBC journalist and documentary...
Jun 14, 2024 at 1:53 PM
