Recent Activity
Activity stream for all registered members at Science for ME.
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alktipping liked Jonathan Edwards's post in the thread Measuring cerebral hypoperfusion with Doppler ultrasound.
It would. I always get that after getting up from a sofa if I have been sitting upright, but I don't get it getting up from a sofa if I...
Jun 14, 2024 at 11:07 PM -
alktipping liked Trish's post in the thread Measuring cerebral hypoperfusion with Doppler ultrasound.
Why would spending a lot of time horizontal affect what happens in terms of blood pooling when standing up, apart from the initial...
Jun 14, 2024 at 11:07 PM -
alktipping liked JemPD's post in the thread Measuring cerebral hypoperfusion with Doppler ultrasound.
interesting, because id not noticed that it happens after i've been sitting rather than lying, but i had noticed that it weirdly (to me)...
Jun 14, 2024 at 11:07 PM -
alktipping liked Jonathan Edwards's post in the thread Measuring cerebral hypoperfusion with Doppler ultrasound.
The shift in plasma protein level is almost certainly part of a long term mechanism to re-adjust the blood volume needed for perfusion...
Jun 14, 2024 at 11:06 PM -
alktipping liked Hutan's post in the thread Measuring cerebral hypoperfusion with Doppler ultrasound.
I'm pretty sure though that the orthostatic intolerance in my children and I started at the same time as all the other symptoms. And so...
Jun 14, 2024 at 11:06 PM -
Dakota15 liked Kalliope's post in the thread USA: The RECOVER Initiative - Long Covid research.
Trial by Error by David Tuller Betsy Ladyshetz on Problems with NIH's RECOVER Initiative Presentation: Science journalist Betsy...
Jun 14, 2024 at 11:05 PM -
alktipping liked Joan Crawford's post in the thread Protocol REVERSE-Long COVID-19 With Baricitinib Study (REVERSE-LC).
The reference to Alzheimers or other dementia seems odd. The neuropsychological issues pwME (so assume similar in LC?) are related to...
Jun 14, 2024 at 11:04 PM -
alktipping liked Trish's post in the thread Open Medicine Foundation (OMF).
Thanks for the replies. Your work on all this looks important. Are you planning to publish anything soon about your plans for a package...
Jun 14, 2024 at 11:01 PM -
alktipping liked MelbME's post in the thread Open Medicine Foundation (OMF).
Yeah you can track symptoms as many times s you like over the day. I was just using an example in my description of day to day. But...
Jun 14, 2024 at 11:01 PM -
alktipping liked Trish's post in the thread Open Medicine Foundation (OMF).
Are you aware of or in touch with people researching the Visible app that uses HR and HRV monitoring as well as symptoms and FUNCAP? I'm...
Jun 14, 2024 at 11:00 PM -
alktipping liked Wyva's post in the thread Open Medicine Foundation (OMF).
I can't speak for others, but I'm one of those people who feel worse after waking up. However, if the day is going to be a "bad" one, I...
Jun 14, 2024 at 11:00 PM -
alktipping liked Kitty's post in the thread Open Medicine Foundation (OMF).
Not able to speak for others, but I can't. I may wake up feeling much worse than usual, yet two hours later feel as well as I ever do....
Jun 14, 2024 at 11:00 PM -
alktipping liked MelbME's post in the thread Open Medicine Foundation (OMF).
Yeah I'm aware of visible. I think they try estimate capacity in the morning right? Sleep data i think. I'd be looking broad symptom...
Jun 14, 2024 at 11:00 PM -
alktipping liked MelbME's post in the thread Open Medicine Foundation (OMF).
Have you used visible app to predict your day? Does it do a better job than you at predicting your day?
Jun 14, 2024 at 10:59 PM
