Recent Activity
Activity stream for all registered members at Science for ME.
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SNT Gatchaman liked Trish's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Is this normal in webinars like this, or is it specially inserted because of mythology about abusive pwME? It seems to me to be pretty...
Jun 3, 2024 at 11:27 AM -
MEMarge liked NelliePledge's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Woah that is ridiculous. Are they deliberately trying to upset people so that they get cross on the call. These people are so...
Jun 3, 2024 at 11:27 AM -
MEMarge liked NelliePledge's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Yes what PPI was there at the initial stage of scoping out the project, the assumption appears to have been for a bunch of...
Jun 3, 2024 at 11:27 AM -
forestglip replied to the thread Modern environmental factors.
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: the biology of a neglected disease, Arron et al, 03 June 2024 Thread
Jun 3, 2024 at 11:26 AM -
MelbME liked Mij's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
@bobbler Until they figure it all out then that's what we're stuck with. Malaise is a medical term that's used for cardiac patients-...
Jun 3, 2024 at 11:25 AM -
Deanne NZ liked Paraprosdokian's post in the thread Preprint Transfer of IgG from Long COVID patients induces symptomology in mice, 2024, Vidarsson+.
I was quite excited when I saw this paper because if it is correct it would be a big step towards understanding the cause of LC (and...
Jun 3, 2024 at 11:24 AM
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Eleanor liked Paraprosdokian's post in the thread Preprint Transfer of IgG from Long COVID patients induces symptomology in mice, 2024, Vidarsson+.
I was quite excited when I saw this paper because if it is correct it would be a big step towards understanding the cause of LC (and...
Jun 3, 2024 at 11:23 AM
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Simone liked Hutan's post in the thread Investigation into the restoration of TRPM3 ion channel activity in post COVID-19 ...,Sasso, Marshall-Gradisnik et al,2024.
Sure, but we never see such well-powered and definitive studies out of NCNED. They have received a lot of the Australian ME/CFS...
Jun 3, 2024 at 11:23 AM -
Deanne NZ liked MelbME's post in the thread Preprint Transfer of IgG from Long COVID patients induces symptomology in mice, 2024, Vidarsson+.
They had a mouse for every sample. Makes me think they planned to do one person per mouse but then realised they forgot to account for...
Jun 3, 2024 at 11:22 AM -
Hutan liked NelliePledge's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Woah that is ridiculous. Are they deliberately trying to upset people so that they get cross on the call. These people are so...
Jun 3, 2024 at 11:22 AM -
Hutan liked NelliePledge's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Yes what PPI was there at the initial stage of scoping out the project, the assumption appears to have been for a bunch of...
Jun 3, 2024 at 11:22 AM -
Hutan liked MEMarge's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Excerpts from Email re workshop tomorrow: "Clinical trial design in people with ME/CFS on 4th June 2024, 13:00 to 15:30. The workshop...
Jun 3, 2024 at 11:21 AM -
Hutan liked Trish's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Is this normal in webinars like this, or is it specially inserted because of mythology about abusive pwME? It seems to me to be pretty...
Jun 3, 2024 at 11:21 AM
