Recent Activity
Activity stream for all registered members at Science for ME.
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bobbler replied to the thread : TV casting call for people living with ME/CFS.
It’s terrible if so in relation to the running /sports programme but it’s an interesting choice. It’s the one where eg if you get cold...
Jun 14, 2024 at 5:20 AM -
Sean liked Jonathan Edwards's post in the thread Webinar: USA: National Academy of Medicine: New Definition Proposed for Long COVID, June 11, 2024, 1 PM EDT.
It looks completely meaningless to be honest, if it includes lupus, MCAS, any symptom, any time after Covid... Everyone who is ill for...
Jun 14, 2024 at 5:18 AM -
Sean liked ME/CFS Skeptic's post in the thread Webinar: USA: National Academy of Medicine: New Definition Proposed for Long COVID, June 11, 2024, 1 PM EDT.
The definition seems to be overly inclusive. It does not require any particular symptom, does not require any level of functional...
Jun 14, 2024 at 5:18 AM -
Sean replied to the thread Guillain Barre Syndrome.
:( All the best to your dad and family, Snowy.
Jun 14, 2024 at 5:17 AM -
Sean liked Snow Leopard's post in the thread Guillain Barre Syndrome.
Yes. The time frame of ITP is different (typically develops rapidly, within 1 week of infection or vaccine) and isn't necessarily...
Jun 14, 2024 at 5:17 AM -
Sean liked Hutan's post in the thread Guillain Barre Syndrome.
I'm so sorry about your Dad's illnesses. They do seem like they might be a clue as to what happened to you. ITP - is that immune...
Jun 14, 2024 at 5:17 AM -
Sean liked Snow Leopard's post in the thread Guillain Barre Syndrome.
Okay, so I have previously discussed how poor recovery to Guillain Barre Syndrome often leads to severe fatigue and ME-like symptoms...
Jun 14, 2024 at 5:17 AM -
Hutan liked Snow Leopard's post in the thread EXCLUSIVE: Man, 32, becomes fully paralyzed within days of catching COVID due to rare syndrome.
I remember there was someone on Twitter arguing that medical illnesses should be experimentally induced in medical doctors during...
Jun 14, 2024 at 5:15 AM -
Hutan liked Binkie4's post in the thread EXCLUSIVE: Man, 32, becomes fully paralyzed within days of catching COVID due to rare syndrome.
I think you can encourage the development of genuine empathy, not really " instill it " but promote its understanding and use in...
Jun 14, 2024 at 5:15 AM -
MelbME liked forestglip's post in the thread Open Medicine Foundation (OMF).
FUNCAP seems like a pretty good way to measure. (S4ME thread about it) [MEDIA] Very cool about the Activpal! Too bad it looks like...
Jun 14, 2024 at 5:15 AM -
Hutan liked Binkie4's post in the thread EXCLUSIVE: Man, 32, becomes fully paralyzed within days of catching COVID due to rare syndrome.
Or some omissions in their training. Surely it would be possible to include some empathy training?
Jun 14, 2024 at 5:15 AM
