Recent Activity
Activity stream for all registered members at Science for ME.
-
Evergreen liked EndME's post in the thread UK:NHS: Feel Good Tennis for Long Covid.
First the loss to domestic violator Zverev on Court Philippe Chatrier and now this, it must have been a tough couple of days...
Jun 3, 2024 at 11:34 AM -
Evergreen liked NelliePledge's post in the thread UK:NHS: Feel Good Tennis for Long Covid.
Who gets the advantage :whistle:
Jun 3, 2024 at 11:33 AM -
MelbME liked bobbler's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
Over there/in other countries did the medical profession (I don't know if they still do) write patient notes and medications etc in...
Jun 3, 2024 at 11:31 AM -
MelbME liked bobbler's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
That's interesting, but nope nothing like my PEM, which has been far more like you suddenly get eg glandular fever. In the earlier years...
Jun 3, 2024 at 11:31 AM -
MelbME liked Kitty's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
When it was used to describe my illness, I think it really was in that sense. I first heard it in the mid-70s, when I'd seen the GP...
Jun 3, 2024 at 11:31 AM -
MelbME liked DigitalDrifter's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
They mean different things to different people but I think diluting the criteria to allow for fatigue after exercise can be highly...
Jun 3, 2024 at 11:31 AM -
MelbME liked poetinsf's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
If you are asking if I get brain fog, yes, I still get it as a part of PEM. But the cognitive PEM has never been nearly as big a problem...
Jun 3, 2024 at 11:31 AM -
MEMarge liked Hutan's post in the thread UK: New advocacy resource for people with ME in hospital.
Certainly MS is different. But I think it's still legitimate for the ME Association, for example, to expect to have credibility when...
Jun 3, 2024 at 11:30 AM -
MEMarge liked Jonathan Edwards's post in the thread UK: New advocacy resource for people with ME in hospital.
Isn't there a n FND society, probably run by Jon Stone, though? Sharpe has the support of the Royal College of Psychiatrists and even...
Jun 3, 2024 at 11:29 AM -
MEMarge liked Andy's post in the thread UniteToFight2024 Long Covid and ME/CFS conference, 15th and 16th May 2024.
The claim By Ron about patients having MS has previously been discussed here, if it helps, Dr Ron Davis - Updates on ME/CFS research -...
Jun 3, 2024 at 11:28 AM -
MEMarge liked SNT Gatchaman's post in the thread UniteToFight2024 Long Covid and ME/CFS conference, 15th and 16th May 2024.
One of the talks was pre-recorded and posted a couple of weeks ago. Dr Tom Molmans: "Addressing psychic trauma in Long COVID and...
Jun 3, 2024 at 11:28 AM
