Recent Activity
Activity stream for all registered members at Science for ME.
-
Lou B Lou liked Amw66's post in the thread NIH study - where to start?.
[MEDIA][ATTACH]
Jun 14, 2024 at 7:57 AM
-
bobbler replied to the thread Annual reviews for ME/CFS.
Well I think these would be examples along the lines of ‘important five things’ ie no point asking severe about socialising and...
Jun 14, 2024 at 7:56 AM -
bobbler liked JellyBabyKid's post in the thread Annual reviews for ME/CFS.
I have an annual asthma review and am asked "does your asthma stop you from doing any activities" To which my answer (often said in...
Jun 14, 2024 at 7:41 AM -
Amw66 attached a file to the thread NIH study - where to start?.
[MEDIA][ATTACH]
Jun 14, 2024 at 7:38 AM
-
Amw66 liked Sean's post in the thread Guillain Barre Syndrome.
:( All the best to your dad and family, Snowy.
Jun 14, 2024 at 7:18 AM -
Amw66 liked Snow Leopard's post in the thread Guillain Barre Syndrome.
Yes. The time frame of ITP is different (typically develops rapidly, within 1 week of infection or vaccine) and isn't necessarily...
Jun 14, 2024 at 7:18 AM -
Amw66 liked Snow Leopard's post in the thread Guillain Barre Syndrome.
Okay, so I have previously discussed how poor recovery to Guillain Barre Syndrome often leads to severe fatigue and ME-like symptoms...
Jun 14, 2024 at 7:17 AM -
Missense liked forestglip's post in the thread Open Medicine Foundation (OMF).
What metric(s) will you use to track how bad a patient's ME is? Edit: If it's not too expensive, maybe wearables could be incorporated?...
Jun 14, 2024 at 7:16 AM -
Missense liked MelbME's post in the thread Open Medicine Foundation (OMF).
There will be significant variance. It's relying on the treatment journey of hundreds of people. There will likely be a lot of overlap...
Jun 14, 2024 at 7:16 AM -
Missense liked MelbME's post in the thread Open Medicine Foundation (OMF).
Imagine if everyone with ME on this site had a significant work up before each treatment they tried during their journey so far and were...
Jun 14, 2024 at 7:16 AM -
Missense liked MelbME's post in the thread Open Medicine Foundation (OMF).
Do you mean how they feel? FUNCAP looks the best to use right now because it captures the patients prediction of their functional...
Jun 14, 2024 at 7:16 AM -
Amw66 liked Sean's post in the thread Reflections on the CODES trial for adults with dissociative seizures: what we found and considerations for future studies 2024 Stone, Carson, Chalder+.
Sounds to me like what they are really saying is that it is everybody else who is inconvenienced and embarrassed by these seizures. So...
Jun 14, 2024 at 7:16 AM -
Amw66 liked rvallee's post in the thread Reflections on the CODES trial for adults with dissociative seizures: what we found and considerations for future studies 2024 Stone, Carson, Chalder+.
There is an odd part in the paper that talks about how based on this, it may be better to try to make the seizures less bothersome,...
Jun 14, 2024 at 7:15 AM
