Recent Activity

Activity stream for all registered members at Science for ME.

  1. Simon M liked dave30th's post in the thread Esther Crawley.

    I'm assuming this is likely the case and that it's not related to her problematic work record, so am not speculating publicly on reasons...

    Jun 14, 2024 at 10:57 AM
  2. Simon M liked JohnTheJack's post in the thread Esther Crawley.

    I agree with Trish. I think a certain caution is advisable.

    Jun 14, 2024 at 10:55 AM
  3. Simon M liked Amw66's post in the thread Esther Crawley.

    Many consultants are retiring earlier die to tax liabilities on pensions

    Jun 14, 2024 at 10:55 AM
  4. Simon M liked Trish's post in the thread Esther Crawley.

    Moderator note Please confine comments about any named individual to their actions in their professional capacity. A reminder of Rule 2:

    Jun 14, 2024 at 10:53 AM
  5. FMMM1 liked Jonathan Edwards's post in the thread Measuring cerebral hypoperfusion with Doppler ultrasound.

    @Ken Turnbull , I am wondering how reliable this test is as clinical information. Novak seems to have created this category of...

    Jun 14, 2024 at 10:48 AM
  6. Deanne NZ liked sneyz's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.

    Just to underline the absurdity.. Pair this with the repeated grip strength testing, and imagine the title: “ME/CFS is associated with...

    Jun 14, 2024 at 10:46 AM
  7. Deanne NZ liked SNT Gatchaman's post in the thread Measuring cerebral hypoperfusion with Doppler ultrasound.

    We have some older studies using near infrared spectroscopy to measure frontal lobe oxygenation, eg with orthostatic or exercise...

    Jun 14, 2024 at 10:43 AM
  8. Deanne NZ liked MelbME's post in the thread Open Medicine Foundation (OMF).

    Very good points you raise. The slider isn't set 1-10, it is more like 1-100, so you could describe something at 55 and describe the...

    Jun 14, 2024 at 10:42 AM
  9. Deanne NZ liked forestglip's post in the thread Open Medicine Foundation (OMF).

    That's a really good idea. I've always hated trying to track my symptoms with just a 1-10 because two months later, I'll almost...

    Jun 14, 2024 at 10:42 AM
  10. Eddie liked SNT Gatchaman's post in the thread Measuring cerebral hypoperfusion with Doppler ultrasound.

    We have some older studies using near infrared spectroscopy to measure frontal lobe oxygenation, eg with orthostatic or exercise...

    Jun 14, 2024 at 10:42 AM
  11. Eddie liked Jonathan Edwards's post in the thread Measuring cerebral hypoperfusion with Doppler ultrasound.

    @Ken Turnbull , I am wondering how reliable this test is as clinical information. Novak seems to have created this category of...

    Jun 14, 2024 at 10:42 AM
  12. Deanne NZ liked MelbME's post in the thread Open Medicine Foundation (OMF).

    It's not the features, it's the way they are tracked. We have the problem of reliability of a symptom experience being accurate based on...

    Jun 14, 2024 at 10:41 AM
  13. Deanne NZ liked forestglip's post in the thread Open Medicine Foundation (OMF).

    FUNCAP seems like a pretty good way to measure. (S4ME thread about it) [MEDIA] Very cool about the Activpal! Too bad it looks like...

    Jun 14, 2024 at 10:41 AM
  14. Deanne NZ liked MelbME's post in the thread Open Medicine Foundation (OMF).

    Do you mean how they feel? FUNCAP looks the best to use right now because it captures the patients prediction of their functional...

    Jun 14, 2024 at 10:41 AM
  15. Deanne NZ liked forestglip's post in the thread Open Medicine Foundation (OMF).

    What metric(s) will you use to track how bad a patient's ME is? Edit: If it's not too expensive, maybe wearables could be incorporated?...

    Jun 14, 2024 at 10:40 AM
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