Recent Activity
Activity stream for all registered members at Science for ME.
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Tapanui 'Flu liked Ravn's post in the thread News from Aotearoa/New Zealand and the Pacific Islands.
After that serious piece of work Tapanui 'Flu is having some fun with this Twitter campaign aimed at John Oliver and Jon Stewart
Jun 3, 2024 at 11:03 AM -
NelliePledge replied to the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Yes what PPI was there at the initial stage of scoping out the project, the assumption appears to have been for a bunch of...
Jun 3, 2024 at 11:02 AM -
Trish replied to the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Is this normal in webinars like this, or is it specially inserted because of mythology about abusive pwME? It seems to me to be pretty...
Jun 3, 2024 at 11:00 AM -
forestglip liked Kalliope's post in the thread Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (Me/Cfs): The Biology of a Neglected Disease, 2023/4, Pretorius et al.
Merged thread Now published: Abstract: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a chronic, debilitating...
Jun 3, 2024 at 11:00 AM -
ME/CFS Skeptic liked Simon M's post in the thread Preprint Development of Epidemiological Research Guidelines for Myalgic Encephalomyelitis / Chronic Fatigue Syndrome in Canada, 2024, Nacul.
When DecodeME looked at this, that was the reason we made the choice - plus reducing the burden for patients. That recommendation seems...
Jun 3, 2024 at 10:56 AM -
NelliePledge liked Amw66's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
It would be interesting to know when this actually started . It smacks of a process and methodology that's sat on a shelf awaiting...
Jun 3, 2024 at 10:53 AM -
ToneAl replied to the thread Functional Neurological Disorder (FND) - articles, social media and discussion.
Or maybe it's missing in action.
Jun 3, 2024 at 10:53 AM -
MEMarge replied to the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Excerpts from Email re workshop tomorrow: "Clinical trial design in people with ME/CFS on 4th June 2024, 13:00 to 15:30. The workshop...
Jun 3, 2024 at 10:53 AM -
Tapanui 'Flu liked Ravn's post in the thread Tapanui Flu.
Tapanui 'Flu is having some fun with this Twitter campaign aimed at John Oliver and Jon Stewart
Jun 3, 2024 at 10:51 AM -
NelliePledge liked Andy's post in the thread Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al.
Which we now know is BS, given all the effort preference garbage rolled out by Walitt. He hasn't earned my respect and trust, in fact...
Jun 3, 2024 at 10:47 AM -
MEMarge liked Lou B Lou's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
But it's not and never will be collaborative. Sarah Tyson and Russell Fleming don't do collaboration. They presume to speak for us,...
Jun 3, 2024 at 10:46 AM -
MEMarge liked JellyBabyKid's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
This is a really good point. None of this should be in any way antagonistic, it should be completely collaborative.
Jun 3, 2024 at 10:46 AM
