Recent Activity
Activity stream for all registered members at Science for ME.
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Sean liked Nightsong's post in the thread #ThereForME campaign / Building an NHS that’s there for Long Covid and ME.
I realise that this is going to be an unpopular post, but I have serious concerns about this campaign. It has the potential to affect...
Sep 21, 2024 at 1:19 AM -
Sean liked hotblack's post in the thread #ThereForME campaign / Building an NHS that’s there for Long Covid and ME.
That seems… significant. I hadn’t heard this, thanks for sharing the information.
Sep 21, 2024 at 1:19 AM -
Sean liked Caroline Struthers's post in the thread #ThereForME campaign / Building an NHS that’s there for Long Covid and ME.
Did David Strain sign it? I didn't see his name. He's recently been appointed as the Parliamentary Thematic Research Lead for Health...
Sep 21, 2024 at 1:19 AM -
Sean liked Andy's post in the thread #ThereForME campaign / Building an NHS that’s there for Long Covid and ME.
Trial By Error: UK Health Care Professionals Appeal to Health Secretary for Quick Action on Poor ME Care "Tuesday, September 17th, was...
Sep 21, 2024 at 1:19 AM -
Sean liked Kitty's post in the thread #ThereForME campaign / Building an NHS that’s there for Long Covid and ME.
I'm sure they are. They can wave a big flag saying "We're there for ME!" knowing that not many people read the small print.
Sep 21, 2024 at 1:19 AM -
Sean liked hotblack's post in the thread #ThereForME campaign / Building an NHS that’s there for Long Covid and ME.
I share many of your concerns, but hope you are wrong. And I do think making a strong case that they would be throwing good money after...
Sep 21, 2024 at 1:18 AM -
Sean liked Jonathan Edwards's post in the thread #ThereForME campaign / Building an NHS that’s there for Long Covid and ME.
I am afraid that is unlikely. The ministers involved, including Starmer, have indicated very clearly that there have swallowed the...
Sep 21, 2024 at 1:18 AM -
Sean liked hotblack's post in the thread #ThereForME campaign / Building an NHS that’s there for Long Covid and ME.
It’s probably not that surprising in some ways. A lot of the ThereForME people are relatively new to this area. When I was first ill a...
Sep 21, 2024 at 1:18 AM -
Sean liked hotblack's post in the thread #ThereForME campaign / Building an NHS that’s there for Long Covid and ME.
Well put. I wonder if a push for reform rather the usual ‘give us more money’ message would actually be better received by ministers too.
Sep 21, 2024 at 1:18 AM -
Sean liked Nightsong's post in the thread #ThereForME campaign / Building an NHS that’s there for Long Covid and ME.
This strikes me as one of these things that is very well-meaning but could easily backfire. As has been previously said Chew-Graham...
Sep 21, 2024 at 1:17 AM -
Sean liked Jonathan Edwards's post in the thread #ThereForME campaign / Building an NHS that’s there for Long Covid and ME.
Gladwell's name is not there. I think this is a very different group of people, mostly GPs, rehabilitationists, physios and...
Sep 21, 2024 at 1:17 AM -
Sean liked Jonathan Edwards's post in the thread #ThereForME campaign / Building an NHS that’s there for Long Covid and ME.
I think there are fairly well established networks through the charities, and no doubt through BACME and the Primary Care BPS community....
Sep 21, 2024 at 1:16 AM -
Sean liked NelliePledge's post in the thread #ThereForME campaign / Building an NHS that’s there for Long Covid and ME.
I guess it is positive if people in health professions with a psyscosocial perspective or a history of one are signing up to this. A...
Sep 21, 2024 at 1:15 AM -
Sean liked Dolphin's post in the thread #ThereForME campaign / Building an NHS that’s there for Long Covid and ME.
I also wonder how many are strongly critical of the biopsychosocial viewpoint e.g. with regard to graded activity/exercise/CBT. Possibly...
Sep 21, 2024 at 1:15 AM
