Recent Activity

Activity stream for all registered members at Science for ME.

  1. MEMarge liked NelliePledge's post in the thread European ME Coalition ME/CFS Pledge for the 2024 European elections.

    Really good idea :thumbup:

    Jun 3, 2024 at 6:12 PM
  2. MEMarge liked Andy's post in the thread European ME Coalition ME/CFS Pledge for the 2024 European elections.

    From Twitter, "The list of supporters keeps on growing. 32 candidates and/or MEPs have signed the ME/CFS pledge thus far."

    Jun 3, 2024 at 6:12 PM
  3. MEMarge liked Andy's post in the thread European ME Coalition ME/CFS Pledge for the 2024 European elections.

    "The ME/CFS pledge for the European elections We, at the European ME Coalition (EMEC) call upon candidates in the European elections to...

    Jun 3, 2024 at 6:12 PM
  4. Missense liked IanMcPhee's post in the thread Walk for ME 2024.

    I'm a little late, but Walk for ME is running again this year, and so far the team target is an amazing £10,000! If you would like to...

    Jun 3, 2024 at 6:11 PM
  5. RaviHVJ liked JemPD's post in the thread Top Canadian scientist alleges he was barred from studying mystery brain illness.

    shocked they havent already.

    Jun 3, 2024 at 6:11 PM
  6. Missense liked Yann04's post in the thread Open Medicine Foundation (OMF).

    I would be very happy to have health insurance reimbursed Gazpacho prescriptions. :)

    Jun 3, 2024 at 6:11 PM
  7. Missense liked MelbME's post in the thread Open Medicine Foundation (OMF).

    Not convincing data in ME yet we hope to provide the answers to this question by testing sham, saline, hypotonic saline and hypertonic...

    Jun 3, 2024 at 6:11 PM
  8. rvallee liked Simon M's post in the thread Preprint Development of Epidemiological Research Guidelines for Myalgic Encephalomyelitis / Chronic Fatigue Syndrome in Canada, 2024, Nacul.

    When DecodeME looked at this, that was the reason we made the choice - plus reducing the burden for patients. That recommendation seems...

    Jun 3, 2024 at 6:05 PM
  9. Lindberg replied to the thread Open Medicine Foundation (OMF).

    Hi, @MelbME! Just wanted to know if you have read this recent research about low vasopressin in ME-patients and the suggestion of...

    Jun 3, 2024 at 5:54 PM
  10. JellyBabyKid liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

    It is. They decided what they wanted to do, then asked some pwME for feedback. They also engaged here and chose to disregard all...

    Jun 3, 2024 at 5:53 PM
  11. Peter Trewhitt liked JemPD's post in the thread Top Canadian scientist alleges he was barred from studying mystery brain illness.

    shocked they havent already.

    Jun 3, 2024 at 5:41 PM
  12. Peter Trewhitt liked glennthefrog's post in the thread Top Canadian scientist alleges he was barred from studying mystery brain illness.

    they'll rebrand them as FND any time soon

    Jun 3, 2024 at 5:41 PM
  13. Peter Trewhitt liked RaviHVJ's post in the thread Top Canadian scientist alleges he was barred from studying mystery brain illness.

    https://www.theguardian.com/world/article/2024/jun/03/canada-email-leak-new-brunswick-mystery-illness Quotes: "A leading federal...

    Jun 3, 2024 at 5:40 PM
  14. Peter Trewhitt liked Yann04's post in the thread United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland).

    Residents to get help with long Covid symptoms - BBC People who are struggling with symptoms of long Covid can get help from a...

    Jun 3, 2024 at 5:40 PM
  15. Peter Trewhitt liked NelliePledge's post in the thread United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland).

    I always find such articles stressful and worrying for the person engaging in the strenuous activity People are entitled to do what...

    Jun 3, 2024 at 5:40 PM
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