Recent Activity
Activity stream for all registered members at Science for ME.
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Hutan liked Trish's post in the thread EU: News from the European ME Coalition (EMEC).
Thread here: https://www.s4me.info/threads/european-me-coalition-me-cfs-pledge-for-the-2024-european-elections.38784/
Jun 3, 2024 at 6:48 PM -
Wyva liked Trish's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
And attribute that absolutely zero abuse to the disclaimer/warning? Seriously, of course no online seminar that invites audience...
Jun 3, 2024 at 6:47 PM -
Wyva liked Lou B Lou's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
"In rare cases where you disagree, feel free to comment, but please don’t be abusive. Any abusive language will not be tolerated, and...
Jun 3, 2024 at 6:47 PM -
Hutan liked Amw66's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Exactly this. Chris Ponting' has often said that the input of pwME in Decode ME from the start proved key to how questions were framed...
Jun 3, 2024 at 6:46 PM -
Hutan liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
It is. They decided what they wanted to do, then asked some pwME for feedback. They also engaged here and chose to disregard all...
Jun 3, 2024 at 6:46 PM -
Wyva liked NelliePledge's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
Woah that is ridiculous. Are they deliberately trying to upset people so that they get cross on the call. These people are so...
Jun 3, 2024 at 6:46 PM -
Wyva liked Trish's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
Is this normal in webinars like this, or is it specially inserted because of mythology about abusive pwME? It seems to me to be pretty...
Jun 3, 2024 at 6:46 PM -
Hutan liked Trish's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Some posts have been moved to: Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024
Jun 3, 2024 at 6:46 PM -
Trish liked Yann04's post in the thread Top Canadian scientist alleges he was barred from studying mystery brain illness.
Don’t curse it…
Jun 3, 2024 at 6:44 PM -
Trish liked RaviHVJ's post in the thread Top Canadian scientist alleges he was barred from studying mystery brain illness.
Clearly Simon Wessely is losing his touch. 15 years ago, he would have already done two interviews with the BBC describing this as a...
Jun 3, 2024 at 6:44 PM -
Trish liked Arnie Pye's post in the thread The economist: Many mental health conditions have bodily triggers.
I remember reading that schizophrenia is exacerbated by common nutritional deficiencies. One of the nutrients mentioned is vitamin D. If...
Jun 3, 2024 at 6:44 PM -
Trish liked Jonathan Edwards's post in the thread Open Medicine Foundation (OMF).
Yes, Campath can produce years of profound T cell depletion at doses that produce very brief B cell depletion. I think I suggested it as...
Jun 3, 2024 at 6:43 PM -
Trish liked mango's post in the thread Open Medicine Foundation (OMF).
I just want to add that the only oral rehydration fluids that help for me are the ones that contain both salts and glucose. Specifically...
Jun 3, 2024 at 6:42 PM
