Recent Activity

Activity stream for all registered members at Science for ME.

  1. MeSci liked John Mac's post in the thread Trial Report Whole blood transcriptome in long-COVID patients reveals association with lung function and immune response, Blankestijn et al, 2024.

    Abstract Background Months after infection with SARS-CoV-2, at least 10% of patients still experience complaints. Long-COVID is a...

    Jun 3, 2024 at 2:23 PM
  2. Yann04 liked Mij's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.

    I hope you didn't interpret my description of PEM as minor. I was just describing how malaise is used in a medical setting Of...

    Jun 3, 2024 at 2:22 PM
  3. Yann04 liked Kitty's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.

    When it was used to describe my illness, I think it really was in that sense. I first heard it in the mid-70s, when I'd seen the GP...

    Jun 3, 2024 at 2:22 PM
  4. RedFox liked Yann04's post in the thread Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al.

    Yes, the fact they are planning a follow up on PEM I am thankful for.

    Jun 3, 2024 at 2:19 PM
  5. RedFox liked RaviHVJ's post in the thread Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al.

    The thing that caught my eye was him saying that 8 other studies have resulted from the intramural one, which is new information to me...

    Jun 3, 2024 at 2:19 PM
  6. RedFox liked Yann04's post in the thread Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al.

    From the article: This is the second time that Nath has alluded to the demoralizing effect that attacks can have on researchers. (The...

    Jun 3, 2024 at 2:19 PM
  7. RedFox liked Yann04's post in the thread Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al.

    Health Rising (Cort Johnson) just released a piece on the study and it’s findings. While I think parts of it were well written, I was...

    Jun 3, 2024 at 2:19 PM
  8. MeSci liked Adrian's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

    If I were working in this area the first thing I would do is set out what the PROM is trying to achieve and hence define the properties...

    Jun 3, 2024 at 2:17 PM
  9. RedFox liked Trish's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.

    Fatigue is what I felt when well after a long hike, dancing all night or being up several times a night feeding a baby or caring for a...

    Jun 3, 2024 at 2:17 PM
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