Recent Activity
Activity stream for all registered members at Science for ME.
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livinglighter liked Joan Crawford's post in the thread Lancet - Medically unexplained symptoms explained.
Commentary re newly published? trial on MUS in the Lancet. Silje Endresen Reme https://doi.org/10.1016/S0140-6736(24)01138-3...
Jun 14, 2024 at 2:05 PM -
forestglip liked Snow Leopard's post in the thread EXCLUSIVE: Man, 32, becomes fully paralyzed within days of catching COVID due to rare syndrome.
I remember there was someone on Twitter arguing that medical illnesses should be experimentally induced in medical doctors during...
Jun 14, 2024 at 2:02 PM -
forestglip liked Binkie4's post in the thread EXCLUSIVE: Man, 32, becomes fully paralyzed within days of catching COVID due to rare syndrome.
I think you can encourage the development of genuine empathy, not really " instill it " but promote its understanding and use in...
Jun 14, 2024 at 2:01 PM -
forestglip liked csinclair02's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
One has to wonder what it would have been like to be a fly on the wall at NIH. I can't imagine that Nath likes working with Walitt. But...
Jun 14, 2024 at 2:01 PM -
Joan Crawford liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
Excellent email @PhysiosforME thank you
Jun 14, 2024 at 2:00 PM -
Joan Crawford liked Trish's post in the thread : TV casting call for people living with ME/CFS.
Fantastic, thank you so much, @PhysiosforME
Jun 14, 2024 at 2:00 PM -
Joan Crawford liked PhysiosforME's post in the thread : TV casting call for people living with ME/CFS.
We have emailed the TV company: Dear Janet, we are a research, education and advocacy group aiming to improve physiotherapy...
Jun 14, 2024 at 2:00 PM -
livinglighter liked bobbler's post in the thread Reflections on the CODES trial for adults with dissociative seizures: what we found and considerations for future studies 2024 Stone, Carson, Chalder+.
As if drilling people to think they should avoid it and be embarrassed by it actually helps reduce it rather than adding psychological...
Jun 14, 2024 at 2:00 PM -
forestglip liked Ravn's post in the thread Tapanui Flu.
New blog post For any NZ ME history buffs: One of the references mentioned (not for the main paper under discussion but a later one)...
Jun 14, 2024 at 2:00 PM -
Joan Crawford liked Trish's post in the thread : TV casting call for people living with ME/CFS.
That is extremely concerning. I can't imagine the MEA, AfME or MEAction being so stupid. Even if they can find a member with ME/CFS who...
Jun 14, 2024 at 2:00 PM -
forestglip liked Andy's post in the thread Assessing Functional Capacity in [ME/CFS]: A Patient Informed Questionnaire [FUNCAP], 2024, Sommerfelt et al.
Now published, Assessing Functional Capacity in Myalgic Encephalopathy/Chronic Fatigue Syndrome: A Patient-Informed Questionnaire, open...
Jun 14, 2024 at 1:59 PM -
Joan Crawford liked Kitty's post in the thread : TV casting call for people living with ME/CFS.
I suspect it's probably just idiocy.
Jun 14, 2024 at 1:58 PM -
Wyva liked Kitty's post in the thread Open Medicine Foundation (OMF).
Not able to speak for others, but I can't. I may wake up feeling much worse than usual, yet two hours later feel as well as I ever do....
Jun 14, 2024 at 1:57 PM
