Recent Activity
Activity stream for all registered members at Science for ME.
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Kitty liked JellyBabyKid's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
This is a really good point. None of this should be in any way antagonistic, it should be completely collaborative.
Jun 3, 2024 at 12:18 PM -
Kitty liked bobbler's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
this
Jun 3, 2024 at 12:18 PM -
Kitty liked bobbler's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
that's the safest and most appropriate one, and also closest to an actual 'medical' appointment. ie pointing people to how to use such...
Jun 3, 2024 at 12:18 PM -
Kitty liked bobbler's post in the thread UK: Women forced to attend up to 10 GP appointments to get menopause diagnosis, study finds.
Some of it might be good GPs etc checking it isn't something else, but given sending people away to see if they come back has been...
Jun 3, 2024 at 12:17 PM -
Kitty liked MrMagoo's post in the thread UK: Women forced to attend up to 10 GP appointments to get menopause diagnosis, study finds.
It’s sad when my friends start getting brain fog and poor sleep. It’s like an unspoken dread that they’ll end up like me
Jun 3, 2024 at 12:16 PM -
Kitty liked bobbler's post in the thread [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?.
Over there/in other countries did the medical profession (I don't know if they still do) write patient notes and medications etc in...
Jun 3, 2024 at 12:16 PM -
Yann04 liked ME/CFS Skeptic's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
I don't know if this thread has just slowed down or if others are working on a letter behind the scenes. I think a lot of valid points...
Jun 3, 2024 at 12:13 PM
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Trish liked Lou B Lou's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
"In rare cases where you disagree, feel free to comment, but please don’t be abusive. Any abusive language will not be tolerated, and...
Jun 3, 2024 at 12:11 PM -
Trish liked NelliePledge's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
Woah that is ridiculous. Are they deliberately trying to upset people so that they get cross on the call. These people are so...
Jun 3, 2024 at 12:11 PM -
Trish replied to the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Some posts have been moved to: Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024
Jun 3, 2024 at 12:09 PM -
Lou B Lou replied to the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
"In rare cases where you disagree, feel free to comment, but please don’t be abusive. Any abusive language will not be tolerated, and...
Jun 3, 2024 at 12:02 PM -
MelbME liked Paraprosdokian's post in the thread Preprint Transfer of IgG from Long COVID patients induces symptomology in mice, 2024, Vidarsson+.
I was quite excited when I saw this paper because if it is correct it would be a big step towards understanding the cause of LC (and...
Jun 3, 2024 at 11:57 AM
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Lou B Lou liked NelliePledge's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
Woah that is ridiculous. Are they deliberately trying to upset people so that they get cross on the call. These people are so...
Jun 3, 2024 at 11:56 AM
