Recent Activity
Activity stream for all registered members at Science for ME.
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Deanne NZ liked SNT Gatchaman's post in the thread Measuring cerebral hypoperfusion with Doppler ultrasound.
We have some older studies using near infrared spectroscopy to measure frontal lobe oxygenation, eg with orthostatic or exercise...
Jun 14, 2024 at 10:43 AM -
Deanne NZ liked MelbME's post in the thread Open Medicine Foundation (OMF).
Very good points you raise. The slider isn't set 1-10, it is more like 1-100, so you could describe something at 55 and describe the...
Jun 14, 2024 at 10:42 AM -
Deanne NZ liked forestglip's post in the thread Open Medicine Foundation (OMF).
That's a really good idea. I've always hated trying to track my symptoms with just a 1-10 because two months later, I'll almost...
Jun 14, 2024 at 10:42 AM -
Eddie liked SNT Gatchaman's post in the thread Measuring cerebral hypoperfusion with Doppler ultrasound.
We have some older studies using near infrared spectroscopy to measure frontal lobe oxygenation, eg with orthostatic or exercise...
Jun 14, 2024 at 10:42 AM -
Eddie liked Jonathan Edwards's post in the thread Measuring cerebral hypoperfusion with Doppler ultrasound.
@Ken Turnbull , I am wondering how reliable this test is as clinical information. Novak seems to have created this category of...
Jun 14, 2024 at 10:42 AM -
Deanne NZ liked MelbME's post in the thread Open Medicine Foundation (OMF).
It's not the features, it's the way they are tracked. We have the problem of reliability of a symptom experience being accurate based on...
Jun 14, 2024 at 10:41 AM -
Deanne NZ liked forestglip's post in the thread Open Medicine Foundation (OMF).
FUNCAP seems like a pretty good way to measure. (S4ME thread about it) [MEDIA] Very cool about the Activpal! Too bad it looks like...
Jun 14, 2024 at 10:41 AM -
Deanne NZ liked MelbME's post in the thread Open Medicine Foundation (OMF).
Do you mean how they feel? FUNCAP looks the best to use right now because it captures the patients prediction of their functional...
Jun 14, 2024 at 10:41 AM -
Deanne NZ liked forestglip's post in the thread Open Medicine Foundation (OMF).
What metric(s) will you use to track how bad a patient's ME is? Edit: If it's not too expensive, maybe wearables could be incorporated?...
Jun 14, 2024 at 10:40 AM -
Deanne NZ liked MelbME's post in the thread Open Medicine Foundation (OMF).
Imagine if everyone with ME on this site had a significant work up before each treatment they tried during their journey so far and were...
Jun 14, 2024 at 10:40 AM -
Deanne NZ liked MelbME's post in the thread Open Medicine Foundation (OMF).
There will be significant variance. It's relying on the treatment journey of hundreds of people. There will likely be a lot of overlap...
Jun 14, 2024 at 10:39 AM -
Deanne NZ liked Jonathan Edwards's post in the thread Open Medicine Foundation (OMF).
I am interested to know how this method would work @MelbME. At present we do not know if any treatments are effective. If treatments...
Jun 14, 2024 at 10:38 AM -
Deanne NZ liked MelbME's post in the thread Open Medicine Foundation (OMF).
Yes this is a large scale project that we expect to take another 2-3 years to complete. The idea is to build an initial large dataset...
Jun 14, 2024 at 10:38 AM -
Deanne NZ liked Ravn's post in the thread Tapanui Flu.
New blog post For any NZ ME history buffs: One of the references mentioned (not for the main paper under discussion but a later one)...
Jun 14, 2024 at 10:36 AM -
livinglighter liked Sean's post in the thread Guillain Barre Syndrome.
:( All the best to your dad and family, Snowy.
Jun 14, 2024 at 10:28 AM
