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I disagree somewhat. Helping people better cope with chronic illness is valuable because we can't just invent a cure for all diseases in the foreseeable future. Cancer, heart disease, Alzheimer's, and so on kill millions of people a year despite us having thrown billions at them, and done lots...

PwME and LC get gaslighted regardless of gender, but I believe it's worse for men than women.

I can only see two studies on Clinicaltrials.gov that aren't withddrawn: Pilot Study Into LDN and NAD+ for Treatment of Patients With Post-COVID-19 Syndrome Uncontrolled, unblinded. Yawn. Low-dose Naltrexone for Post-COVID Fatigue Syndrome Double-blinded, 80 in each arm (LDN and placebo)...

A very important point. I believed my ME symptoms were just a strange presentation of my mental conditions for years.

They refer to ME as chronic fatigue once or twice but it's otherwise a pretty solid article.

Here's a piece of research that presents an interesting perspective on chronic illness: "Being Sick Is a Full-Time Job": A Job Analysis of Managing a Chronic Illness https://onlinelibrary.wiley.com/doi/abs/10.1111/1475-6773.13726 Abstract Research Objective The purpose of this study was to...

This is very true. A significant fraction of suicides are impulsive. My experience leads me to the same conclusion. It seems like every time I get a vaccination, I have a short "window" lasting about a week with dramatically reduced symptoms. For example, I can think way faster and get very...

I get the impression her clinic is quite small--I doubt the can even serve 8k people in a reasonable span of time. Yes, please, clinical trials. Nobody should be shelling out that kind of money for a treatment that hasn't been through a single blinded trial.

I personally would not donate blood/organs for several reasons: Donating blood could harm my health. PwME may have low blood volume for example. There could be something in my blood that makes someone sick. I tend to think more chemicals than pathogens, but maybe we have high levels of common...

POTS being more common in the long Covid group is pretty unexpected. I wonder what could explain this? Maybe Covid is causing POTS at a higher rate than other viruses for some reason. Anecodotally, I hear of a lot of long haulers with POTS or POTS-like symptoms.

Here's another article in the series, a comic about a woman who went from being highly athletic to being disabled by POTS. I was an athlete – now I’m 30 and in a wheelchair thanks to long Covid

I started a thread about it here: Outcomes of SARS-CoV-2 Reinfection (Preprint)

Outcomes of SARS-CoV-2 Reinfection Preprint, Open access: https://www.researchsquare.com/article/rs-1749502/v1 Discusses the risk of long Covid from reinfection. They find that a second infection carries additional risk for long Covid. Abstract: First infection with SARS-CoV-2 is associated...

That's looking really good.

No, these drugs aren't ME-related. One is for Alzheimer's and another is for ALS. Not my check personally. The fact that the gov't expected to have to give millions of people Aduhelm caused the Medicare part B premium to increase significantly for everyone this year. Awkwardly, Medicare later...

As morbid as it sounds, you're right. We need to consider survivorship bias when looking at suicidal thoughts in pwME. Otherwise, we might get some absurd results, depending on the rate of actual suicide.

Rock solid article. This is the kind of research we need to see. The paper presents ME and LC as inexorably linked and certainly biological. It gives good advice to mental health professionals for helping clients live with either condition. In short, it's the good kind of psychosocial research.

Yikes. Then I wouldn't be considered to have ME. Then what?

Stigma is a major factor, increasing risk of suicidal ideation by roughly 4 times. No surprise there. Receiving disability benefits increases the risk of suicidal ideation? That's strange. Is it because people on disability have worse functioning, maybe more social isolation? Their conclusion...

Cort Johnson covers the trial, along with a history of Ampligen and AIM ImmunoTech, in Health Rising: Longtime ME/CFS Drug Ampligen Gets Its Shot with Long COVID