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Continuation of notes from the @s4me_info twitter thread. This post is a copy of notes made during the July 30 session at 1:30 PM on Public Health. There were four presenters, Cathy Kline, Gloria Gray, Erin D. Maughan, and Nancy Klimas. === start of comments === The next presentation is by...

Continuation of notes from the @s4me_info twitter thread. This post is a copy of notes made during the July 30 session at 11:00 AM on Treatment. There were four presenters, Luke Liu, Nicola Clague-Baker, Rosie Twomey, and David Kaufman. === start of comments === The first speaker is Luke Liu...

Thanks for posting those extracts, @Wyva! On a slight tangent, I noticed this phrase several times: I don't remember seeing ME/CFS written out with an and in the middle. I think it's usually just a slash, same as in the shortened version. I wonder whether phrasing it this way means anything...

Continuation of notes from the @s4me_info twitter thread. This post is a copy of notes made during the July 30 session at 9:45 AM, Immunology/ Infectious Diseases 2. There were three presenters, Wakiro Sato, Gunnar Gottschalk, and Brandon Cox. === start of comments === The next presentation...

During the conference volunteers live-tweeted during several of the conference sessions using the forum's twitter account, s4me_info. This post is a copy of notes made the morning of July 30. There's a brief announcement made by Irina Rozenfeld on changes to ICD coding followed by notes on the...

I forgot to post about this when I first heard about it, but better late than never! MEAction has a new podcast called Chronically Complex. There have been two episodes so far. Episode 1 featured Meghan O’Rourke, author of the book The Invisible Kingdom. There's a transcript of that episode...

Continuation of notes from the @s4me_info twitter thread. This post is a copy of notes made during the July 29 session at 1:40 PM and covers presentations by three speakers: Ali Boolani, Liisa Selin, and Deborah Duricka. === start of comments === The next speaker is Ali Boolani (Clarkson...

Continuation of notes from the @s4me_info twitter thread. This post is a copy of notes made during the July 29 session Immunology of long COVID presented by Akiko Iwasaki. === start of comments === Iwasaki started with general info on Long Covid. The percentage of symptomatic patients goes...

Biden–Harris Administration Releases Two New Reports on Long COVID to Support Patients and Further Research https://www.hhs.gov/about/news/2022/08/03/biden-harris-administration-releases-two-new-reports-long-covid-support-patients-further-research.html Link to PDF for Services and Supports...

Blog post from Bateman Horne Center on the same subject as the previous post, OMF and BHC Join Forces to Improve Patient Care.

Continuation of notes from the @s4me_info twitter thread. This post is a copy of notes made during the July 29 session at 11:00 AM, Provocation Studies. === start of comments === The next speaker is Geoffrey Moore (Ithaca College/Cornell University). He talks about prolonged recovery in 80...

Continuation of notes from the @s4me_info twitter thread. This post is a copy of notes made during the July 29 session at 9:40 AM, Clinical Cases Presentation. There were three separate speakers talking about specific cases. === start of comments === The next three presentations focus on...

During the conference volunteers live-tweeted during several of the conference sessions using the forum's twitter account, s4me_info. This post is a copy of notes made during two sessions on July 29 from 9:00 AM - 9:40 AM. First up is Dysbiosis in the gut microbiome accompanies skewed...

Continuation of notes from the @s4me_info twitter thread. This post is a copy of notes made during the July 28 session at 1:30 PM, Immunology 1. There were multiple presenters for this session, see conference schedule for full list. === start of comments === Avik Roy of Simmaron Research is...

Continuation of notes from the @s4me_info twitter thread. This post is a copy of notes made during the July 28 session at 10:30 AM, Provocative Maneuvers: Methods to Induce Symptomatic Features of ME/CFS. There were multiple presenters for this session, see conference schedule for full list...

During the conference volunteers live-tweeted during several of the conference sessions using the forum's twitter account, s4me_info. This post is a copy of notes made during the July 28 keynote session at 9:15 AM, Pathophysiology of exercise intolerance in ME/CFS & long COVID, presented by...

Many years ago, before I had any diagnosis (early 1990s), several doctors did routine checks of heart rate and blood pressure - taken while lying down, then sitting, then standing. My results were always normal. I was declared free of all issues with my blood pressure or heart rate. Then in...

I thought I'd add a quick note on the NASA Lean Test and the need to validate it as a useful tool. Lucinda Bateman from the Bateman Horne Center has a blog post talking about this test, Why the 10-Minute NASA Lean Test? A short excerpt: That said, even though the NASA lean test is more...

EDIT: Corrected an error - added full list of presenters for one of the sessions. More notes from the @s4me_info twitter thread. This post is copied from tweets made during the July 27 session at 11:30 AM, Dysautonomia, presented by Lauren Stiles. At the end there's a brief comment on another...

During the conference volunteers live-tweeted during several of the conference sessions using the forum's twitter account, s4me_info. This post is a copy of notes made during the July 27 session at 9:15 AM, NIH Grant Writing Workshop: For Students, Fellows, Early Stage Investigators and...