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  1. Hutan

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Ed Yong's article now has its own thread here: The Atlantic: Long Covid is everyone's problem, 2021, Ed Yong
  2. Hutan

    The Atlantic: Long Covid is everyone's problem, 2021, Ed Yong

    I've been thinking today that as the Long Covid problem grows, and sufferers can no longer be tidily swept under the psychogenic mat, it might actually be the health insurance companies who call the loudest for solutions.
  3. Hutan

    Acute Corticotropin-Releasing Factor Receptor Type 2 Agonism Result in Sustained Improvement in ME/CFS - Pereira, Bateman et al, 2021

    And yet, it seems it isn't ruled out. And there's the promise of rich Long Covid pickings to attract investors.
  4. Hutan

    GAS (Goal Attainment Scaling in Rehabilitation), GAS-light, and gaslighting.

    Sure, the idea of GAS is ok - define what you are trying to achieve beforehand, and the measure of success. So, the expected outcome is that Mr Smith can work without a frame from his bedroom to his bathroom. A +2 result might be that he's back playing tennis, and a -2 result might be that he...
  5. Hutan

    NICE and Cochrane sign collaborative agreement to deliver ‘living’ guideline recommendations

    or, it ups the stakes for the Cochrane Exercise Review? Hasn't another PACE paper been promised? What could possibly go wrong?
  6. Hutan

    International: IACFS/ME - International Association for CFS/ME, IACFSME

    Posts about an article by Miriam Tucker about autoimmunity (based on findings presented at the IACFSME conference) have been moved here: IACFSME 2021 Virtual Conference
  7. Hutan

    Acute Corticotropin-Releasing Factor Receptor Type 2 Agonism Result in Sustained Improvement in ME/CFS - Pereira, Bateman et al, 2021

    I found it quite difficult to know how much of the drug each participant was given. Regarding the number of steps recorded by a Fitbit: Of the 14 people in the trial, 13 people had data on the change in the number of steps (as a mean of the number of steps per day for the 28 day period prior...
  8. Hutan

    Acute Corticotropin-Releasing Factor Receptor Type 2 Agonism Result in Sustained Improvement in ME/CFS - Pereira, Bateman et al, 2021

    So, objective outcomes were planned, but, sadly, somehow they weren't possible. As @dreampop reminds us, this is a trial of Cortene. There is a substantial commercial interest in showing this drug is a successful treatment. Without picking through the biological justification (which may be...
  9. Hutan

    Editorial: Lancet: "Understanding long COVID: a modern medical challenge", 2021

    I wonder if someone from the current PSP on ME/CFS might like to reply to this, to note that a substantial portion of Long Covid is likely to be yet another post-viral fatigue condition, and so the outcomes of the ME/CFS PSP will be relevant. Of course, unfortunately, the current ME/CFS...
  10. Hutan

    Petition: #MEAction: Publish the NICE ME/CFS Guideline Now

    The low numbers achieved on ME/CFS polls often surprises me. In my country there was a poll against the extension of the school year by two weeks this year, to offset Covid-lockdowns. It got over 20,000 votes in a day, I think, and that's in a very small country. I know it's comparatively...
  11. Hutan

    BPS attempts at psychologizing Long Covid

    I missed this. :thumbup: chrisb. :rofl:
  12. Hutan

    International: World Health Organization News (news relevant to ME/CFS, Long Covid and related conditions)

    A number of posts about PEM have been moved to PEM, timing, symptoms and levels of disability
  13. Hutan

    Guardian Article on NICE pause

    A post about Forward-ME has been moved here: United Kingdom: News from Forward-ME Group
  14. Hutan

    International: World Health Organization News (news relevant to ME/CFS, Long Covid and related conditions)

    I meant for people to click on the arrow next to Rvallee's name. But excellent that you have found that content.
  15. Hutan

    International: World Health Organization News (news relevant to ME/CFS, Long Covid and related conditions)

    Posted on another thread - WHO guidelines for Long Covid (click on the arrow besides rvallee's name in the quote)
  16. Hutan

    UK: Improving Access to Psychological Therapies (IAPT) articles, blogs and discussion

    This thread and the links have information that I think is really relevant to the forthcoming NICE roundtable about the ME/CFS Guideline. Good therapists know that a lot of what they are required to do isn't helping anyone. If counselling services are stretched, target them to people who want...
  17. Hutan

    UK: Improving Access to Psychological Therapies (IAPT) articles, blogs and discussion

    That's a pretty important find @rvallee- the therapists are exaggerating the benefits of talking therapy, and even with that, the performance data of IAPT still looks rubbish. Elizabeth Cotton looks like she might have some useful things to say...
  18. Hutan

    What we're not being told about ME - UnHerd (Tom Chivers)

    Posts about GRADE have been copied or moved to Who Agrees That GRADE is (a) unjustified in theory and (b) wrong in practice?
  19. Hutan

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Some posts have been moved to Structural spinal problems and ME - blogs and social media
  20. Hutan

    General practitioners' experience of the chronic fatigue syndrome, 1991, Ho-Yen and McNamara

    I've posted this paper as much for a letter that was written in response to it: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1371803/ Chronic fatigue syndrome, D.K. Arya There are a few interesting statements, but this one stood out as illustrating how little progress has been made in the last...
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