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https://www.theguardian.com/society/2025/jun/24/keir-starmer-disability-benefit-reforms-rebellion-by-mps As usual, the journalist does not provide the basic factual context that PIP is not an out-of-work benefit.

Interesting choice of journal.

Just in case this is useful to anyone! https://www.biologists.com/grants/travelling-fellowships/

As with autism being found to have genetic links both with intellectual disability and with higher ability. it probably says more about who gets diagnosed.

Line that jumped out at me on skimming the minutes: Danny Altmann "highlighted that there has been no Long Covid research funding of any significance from the NIHR since 2021."

I use a duvet cover with no duvet in it!

Reduced perception of fatigue is a real double-edged sword if it causes you to go beyond your limits. Even if it's just by a little bit each day, because you feel you're a bit brighter for whatever reason, culminating in a crash. I'd guess a lot of us have been down that dead end at times.

It would be nice to think that many of the 266 who chose not to attend did so because they know it would be bullshit.

[Principal Skinner meme] "Could our evidence be so low-quality? No, it's the patients who are wrong."

and "ask your GP" is such a pointless thing to be told by an app when anyone using the app will already have seen their GP. And so patients go round and round in the system on the promise that someone somewhere will have "specialist support" for them (while HCPs complain about patients seeking...

If they're going to start promoting brain retraining, are they going to do the same for all the other unevidenced treatments backed by enthusiastic anecdotes? Why would you lower your standards for one but not others?

Four of the authors are also authors of this study, which found CBT had no effect on whether people developed chronic pain, but the authors claimed efficacy and success anyway...

I hope someone can publicly ask an MEA representative why they are assisting a 'solution' for ME/CFS and Long Covid that categorises these conditions alongside 'Mental Health'* requiring a 'therapy-led'** approach. * as described by the app developers ** according to the MEA's Facebook post...

This one supposedly lets clinicians see your data so they can be prepared for appointments etc. And the data will also be used to rate the clinics on their outcomes. Which will be a good incentive for the clinicians only to recommend the app to patients who are mild/improving and keep...

This isn't NICE-compliant at all, is it? NICE guidelines say rest as required, no fixed incremental increases, only try increasing activity if and when you want to after a period of stability which could be weeks, months or more.

Hopefully people who try out this app can give feedback not only to the MEA but also leave reviews on the app store/Google play store.

Just seen via Mastodon that the Dysautonomia Project has an online conference tomorrow, called Dyscourse https://dyscourse.dysproject.org/series/dyscourse-tools-for-managing/landing_page?bmid=2cf6ad6720dc&bmid_type=member&bmid=2cf6ad6720dc (no idea if it will be any good but might be of...

Just had an exhausting but encouraging phone call with the GP leading the Long Covid service at GDoc (Gloucestershire's GP provider org). Encouraging because he talked knowledgeably about different areas of biomedical research, he sounded quite passionate about trying to find out more about the...

because they've been trained to think that that's how patients think?

The controls had also had Covid, though?