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Another nugget from the paper: As Inigo Montoya might say: You keep using that word, "promising". I do not think it means what you think it means.

The participants were asked to say which one they preferred out of pairs of short descriptions of unnamed therapies, e.g. 'A psychological therapy focused on finding solutions rather than focusing on the problem' or 'A psychological therapy focused on the links between our thought and how we...

35 hospitalised patients. :facepalm:

Slide 19 of the presentation posted here: https://www.s4me.info/threads/usa-the-recover-initiative-long-covid-research.30525/page-7#post-531223 suggests it's a fairly energy-intensive process in itself - "Task analysis to identify and prioritize illness-impacted tasks and functions" and...

re 'lack of accountability' I was thinking of how it resembles situations I've encountered in the area of special needs education and children's services, where systems created for helpful purposes become mechanisms for keeping people at arm's length from the decision-makers and preserving the...

Nice of him to set out how he's adopted various positions on the 'facts' according to what he's experienced emotionally at various times. I wouldn't bet against him doing another 180 at some point.

it comes down to lack of accountability.

yep - I've had a small improvement in cognitive function since taking LDN but that could easily be coincidence. I'm coming up to a year on it, so will stop for a bit at that point and see if I feel any different. It definitely affected my sleep in the first few weeks of building up the dose...

I don't think that's ever really been true (like most claims about how life was better/simpler in the past!). There are endless stories going back centuries about dodgy doctors and snake oil pushers.

It's like deciding to use the term "movement preference" instead of "reflex" to describe what your leg does when someone taps your knee in the right spot. And then getting offended when people tell you you're creating a false impression.

But Walitt says (copied from the EEfRT thread in the Research forum): (my bold) I keep trying to understand what message they think they're conveying with the "effort preference" term, and why they don't seem to be worried by this constant switching between "it's involuntary, they're not...

so much money spent, only for them to have missed the point so badly.

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It's like the joke about someone asking directions and getting the reply "Well I wouldn't start from here."

I was told last week by the Long Covid service in Gloucestershire that they expect their funding to end and the service to close in spring 2025. After that, people with general post-Covid illness will be seen by their usual local GP, but those with fatigue may also be referred to "Pete...

And because patients do by and large have basic common sense, when they get given these lists of complicated impossible exercises they say 'yes, doctor, of course I'll follow this' because they don't have the energy to argue or they don't want to be seen as 'difficult' or having the wrong...

That graphic is a perfect example of the kind of thing that is written to make healthcare professionals feel better, not patients.

https://www.medscape.co.uk/viewarticle/can-brain-training-ease-mental-fog-long-covid-2024a10006zx

Call for evidence for the 'fit note reforms' is here https://www.gov.uk/government/calls-for-evidence/fit-note-reform-call-for-evidence/fit-note-reform-call-for-evidence We welcome all views, particularly from: employers healthcare professionals patients, carers and those who access fit...

Hi Dania, I'm too old to participate, but just wanted to comment on this: Taking breaks during a call doesn't help, in my experience - it just means the whole process takes even longer and gets even more complicated so you end up even more exhausted! Maybe consider supplying participants with...