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Yep.

:rofl::laugh::p Good one @Trish!

Interesting. I have noted for decades that with increased GI problems, my brain fog, and other cognitive issues worsen. When GI issues are somewhat more under control, my brain fog and other cognitive problems temporarily improve. However, I find it's not possible to have a satisfactory...

From the article: "...rejection of GET challenged by many specialists" First, I would question how many specialists have challenged this new guideline on ME. Is it a great number, or a vocal few repeatedly expressing their dissatisfaction? Challenges to this new guideline are doubtless coming...

@Peter Trewhitt You note the term "morally lacking". Very good point. That view of pwME may be one of the important issues at the heart of why we are maligned and mistreated. We are viewed as not only misguided in our illness beliefs, but are seen as immoral. Perhaps even criminal, in our...

Not all of these books can be summarized as "Go to the gym " books, but certainly some of them can.

:thumbup:

Hi @Sarah94. This is one of the national ME organizations in Canada: https://www.mefmaction.com/ This is another Canadian national ME organization: https://millionsmissingcanada.ca/ There are also provincial, and possibly ME organizations in the territories as well. I don't know if each...

I hope pwME who are able, will volunteer for this study. I don't know if they will get copies of their results, but if they do, this might go some way towards indicating a biomedical problem, which may in turn be of assistance with evidence of disability.

This does appear to be a noteworthy change from decades ago. However, it has taken the ME community decades of advocacy, and biomedical research for this change to come about. And, this move is still in its infancy. There is a huge disconnect between the CDC putting up a new website, and a...

Physiotherapists are not qualified mental health workers. If in fact, physios are officially sanctioned to provide psychological counselling, along with their usual therapies, this is concerning. The default perspective always seems to be that mental health issues are interfering with normal...

Excellent point about ethics @Hutan. We have all heard of psych studies that mispresented what they were really about. I don't know if this was the case here, but participants should be completely informed.

Further on "gold standards": it's been my recent experience that one gold standard relied on as such, is not as advertised, an absolute gold standard. However, practitioners with limited knowledge and skills have taken this so-called "gold standard" as the be all and end all, to the detriment...

Signed.

Do any of these FNDpeople ever do brain scans? I would hope they all do, but that's unlikely. Given my own experience being almost shouted at by a neurologist, I'd say brain scans are not often ordered for people with less understood diseases.

:thumbup: This is so very difficult for pwME to do. Cheers to these brave advocates!

Being immersed in cold water has been known to cause heart attacks. The idea that cold water immersion can cure ME has been promoted. :banghead: Probably, cold water immersion has been promoted as a beneficial treatment for many things.

The two-sided BPS stuff about ME: that is, we're at once lazy, but also driven perfectionists, and their illogical criticisms of pwME, reminds me of some women's magazines; learn to bake a rich and delicious chocolate cake, go on a stringent diet, get thinner thighs in thirty days, think...

Good comment @Trish, about the opposing psychological views of pwME: perfectionists, or lazy, malingering, deluded. Hmm.....next we'll be seeing we're all of these at the same time!

Yes, one small letter says a lot.