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Who said this first, not sure but: "When you find yourself in a hole stop digging."

Thank you @Arvo for this. You weren't unclear. Maybe I was. Yes, I read the words "thorough clinical assessment", to mean looking at all spheres including the physical. But they advocate GET/CBT for CFS and ME. So, there doesn't seem to be any change. Unless as you say the full article might...

Thank you @CRG for this explanation. Interesting, the topic of size of divided health care systems vs. national health care has come up for discussion in my household. We have ahem, "universal health care" in Canada. This is run separately by each Province and Territory. Which means it's...

I can really only guess from previous info that they would not advocate thorough clinical assessments, in that they would not cover more in-depth testing such as brain scans, MRIs, immune system tests etc. It's my understanding they advised no in-depth testing for patients suspected of "cfs"...

Agreed! 1) long-time repeated lack of funding excuse 2) yes numbers of misdiagnosed are appalling. I found an article under ME Research UK: "Misdisgnosis on a Grand Scale?" Will see if I can find the link. How shocking to be told one had ME, when it's actually cancer. And, with the clock...

Thank you @Hutan for your detailed summary. I thank Dr. Whittemore very much for her fine work, real sincerity, and long-standing dedication to helping the ME community. Her work is very much appreciated. However, the long-standing reason for lack of funding for ME from NIH has always been...

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Once upon a time I was told my pain was real. The cure, a vacation. Seeking proper biomedical relief for this dreadful, and perhaps dangerous condition took several weeks.

Yes. :thumbup: And, just keep repeating. Repetition, repetition...

"threatments":great! This word should be adopted.... :)

Yes. And, as a patient, I have been concerned about especially therapists asking me if the treatment is helping, or at the close, has it helped. Sorry to say there have been a number of times where treatments unrelated to ME have not helped. Not to mention of course ME! I am reluctant to tell...

Further to "thorough clinical asessment", the quality, time taken, areas explored varies, of course. But when one repeatedly tells a physician about for example, dizziness and balance symptoms, and this is never examined, nor addressed in any way, not even with a Romberg test, this cannot...

In Canada, internal medicine is a specialty. I've never heard of internal medicine called "general" here. Is there a distinction in the UK? Clever shot though, addressing this to internal medicine doctors who maybe don't see a lot of pwME given the policy to not do in-depth testing. My own...

"...thorough clinical assessment..." If they did thorough testing, and not just an in-office clinical assessment which can sometimes tell one diddly-squat, they would find reduced cerebral diffusion in some, POTS in many, other signs of autonomic dysfunction etc. One would hope these findings...

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I understand. Weakness. :( ETA: I have no idea, but maybe the balance of warm water and being in an outdoor pool helped in my case. Who knows. We do know pwME are temperature sensitive. I can get overheated very quickly, and feel ill, heart pounding etc. I have to very soon get cooled off, or...

Not good, @Mij :(. Maybe it depended on the temperature? Although pools aren't going to be hot. A hot bath or shower, will make me feel weak and ill in a few minutes. Other than being supine, a pool is the only place I have noted any relief from OI, or the potential that OI will kick in.

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Speaking of compression, my OI doesn't kick in when I'm in a pool. Not swimming, as that would put me into PEM, but just noodling around is OK. I don't feel lightheaded while upright in the water.