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Interesting about caffeine. Although biomedical ME experts advise against caffeine. I wonder if the caffeine in tea and coffee have equivalent effects in nOH. So, what is nOH? I used to get post prandial exhaustion, to the point where it was like a mini-crash. I would feel weak, unable to...

My OI is much worse in the morning. I start off everyday with hope to accomplish goals. But before I know it I feel more ill, weak, faint etc. I have to lay down. I hate pacing. I really like to accomplish things, and keep at it until they're done. But I'm forced to break tasks down into small...

@Peter Trewhitt @Mithriel Absolutely. Three decades of over funding, and catering to the BPS model has not proven ME is psychological. Whereas, science has shown a number of physical abnormalities with researched pwME. If my recall is correct, some physical abnormalities found decades ago...

Yes up hill and stairs - out of breath, and very painful leg muscles (lactic acid?) I think most doctors don't know ME includes shortness of breath. This makes things complicated with other diagnoses such as asthma. Agree, pwME risk being labeled hypochondriacs. That's happened to me a number...

@Kalliope and @Midnattsol Early on with ME (gradual onset), I would start yawning several times when starting aerobics classes. I did it every class. I get out of breath with exertion. I also have asthma. Sometimes my breathlessness feels like air hunger - with mild activity. But that's not...

Ditto. Cheers.

Yes, I seem to recall early on I felt pressed down upon, towards the floor. I developed ME in 1985. I didn't find much info on it, or CFS.

@Mithriel Yes exactly this, as you said: "...work out a disease for yourself without medical input." I've had to do that for more than ME. But I have gone off topic here.:facepalm: If I had one wish to do with my health, it would be to eliminate the OI. It, and just it, let alone all the...

Ah, @alex3619 thanks for this. I was indeed thinking 1934, Guide's honour. But didn't want to commit for sure to a date, as the ME memory thing can be tricky. Looks like my interpretation of early 1930s and yours don't completely jibe. But close. :) And, yes, let's hope much study carries on...

I had gradual onset ME, and recall the first time I noted standing bothered me was about 4 years on. I too didn't connect the upright position with feeling awful. I just thought I was tired, and needed to sit down. When my ME got much worse, and the OI would kick in, even after laying down, I...

Fascinating history. There were reportedly several cases in LA in the early 1930s. Can't look that up right now to note the link.

Hopeful article, and good advice to physicians to not dismiss patients. Discouraging, in that the horizon for understanding and treatment is ever receeding. I think that at the very least finding similar abnormalities in a number of pwME indicates something physiological is involved, and...

Thank you so very much, Dave!

Alcohol intolerance; interesting. I couldn't make it all the way through this article. If I was physician in that period, I would find this article interesting, but somewhat overwhelming, and confusing.

Thanks for this @TiredSam

I agree. At first I was thinking yay, but then, I realized this is still the same old thing. Sigh.

Thank you for this @Solstice :)

Thank you @Jonathan Edwards for your analysis. This breathing info hit my "oh oh, why haven't I heard of this and tried it button". Very sick people see this stuff and want to try it as soon as possible, to get any level of relief. I've had ME for over 35 years; read copious amounts on the...

Good point. This name calling has been an anti-PR campaign for decades. It is somehow acceptable to overtly smear the reputation of millions of disabled people - the ME community. However, and rightly so, these same, and their fellow believers don't campaign against other groups.

Paraphrased from the article: breathing exercises can have a positive effect on the autonomic nervous system. Has anyone heard of this, tried this, know what these exercises are? As to this article, and the presentation to come, it's a very welcome contrast to the article I just viewed in...